Minaire P, Cherpin J, Flores J L, Weber D
Département de rééducation et réadaptation fonctionnelles, Hôpital Bellevue, Saint-Etienne, France.
World Health Stat Q. 1989;42(3):167-76.
Handicap is the result of a process initiated by an underlying disease, an accident or an abnormality, which leads to a functional deficit in various situations of everyday life. This definition, derived from the International Classification of Impairments, Disabilities, and Handicaps (ICIDH), reflects the desire of the elderly and the handicapped for social integration. It may also form the conceptual basis for analysis of the capacities of individuals and populations. To this end, a micro-survey was conducted in a homogeneous village community of 532 people aged 1-92 years. This study was of the ergonomic type, accompanied by a questionnaire on perceived restrictions and handicaps, and carried out transversely over a period of one month (94.7% participation). The specific objectives of the study were to obtain a reliable functional representation of the population of the village, comparing self-assessment of functional capacity with observed performance, and analysing the effects of age on capacity. The copious data collected in the areas of locomotion, prehension and communication have provided a detailed functional profile of the population studied. These data may be transposed to particular environments, such as transport, housing, school or work, and may serve as a basis for comparisons. The difficulties encountered by subjects in the tests were closely correlated with the situations simulated by the tests. Subjective estimation of handicap proved to be reliable in comparison with actual performance, especially for tests of mobility and highly demanding situations. Estimation of the presence of a handicap increased with age. The deterioration in performance observed was proportional to age, but can be perceived to begin early, at about 30-40 years. Disability-free life expectancy (DFLE) could be an interesting indicator in so far as it appears to be sensitive to the confrontation of individual functional capacities with the environment. However, it is important that any disability used as a basis for calculation should be measured with maximum precision. A community survey of this kind is thus particularly useful for ergonomic purposes, but is also valuable for the planning of medical and social assistance at the local level in the areas of disability and handicap. The combination of observation and listening to people, with an interview, appears to be fruitful and reliable. Single studies of well-targeted samples of the population, or, alternatively, of larger and more significant populations, would be desirable in public health, since the epidemiological approach to handicap has hitherto been essentially focused on diagnosis and medical evaluation.
残疾是由潜在疾病、事故或异常引发的一个过程的结果,它会导致在日常生活的各种情况下出现功能缺陷。这个定义源自《国际损伤、残疾和残障分类》(ICIDH),反映了老年人和残疾人对社会融合的渴望。它也可能构成分析个人和人群能力的概念基础。为此,在一个有532名年龄在1至92岁之间的同质化乡村社区进行了一项微观调查。这项研究属于人体工程学类型,同时伴有一份关于感知到的限制和残疾的问卷,并在一个月的时间内横向开展(参与率为94.7%)。该研究的具体目标是获得该村庄人口可靠的功能表现,将功能能力的自我评估与观察到的表现进行比较,并分析年龄对能力的影响。在运动、抓握和交流领域收集到的大量数据提供了所研究人群详细的功能概况。这些数据可以应用于特定环境,如交通、住房、学校或工作场所,并且可以作为比较的基础。受试者在测试中遇到的困难与测试所模拟的情况密切相关。与实际表现相比,残疾的主观估计被证明是可靠的,尤其是在移动性测试和要求较高的情况下。残疾存在的估计随着年龄的增长而增加。观察到的表现恶化与年龄成正比,但可以察觉到在大约30至40岁时就早早开始了。无残疾预期寿命(DFLE)可能是一个有趣的指标,因为它似乎对个人功能能力与环境的对抗很敏感。然而,重要的是,任何用作计算基础的残疾都应以最大精度进行测量。因此,这种社区调查对于人体工程学目的特别有用,但对于在残疾和残障领域的地方层面规划医疗和社会援助也很有价值。观察人们并倾听他们的意见,再加上访谈,似乎富有成效且可靠。在公共卫生领域,对目标明确的人群样本或更大、更具代表性的人群进行单独研究是可取的,因为迄今为止,残疾的流行病学方法主要集中在诊断和医学评估上。