Hermann Helena, Trachsel Manuel, Mitchell Christine, Biller-Andorno Nikola
Institute of Biomedical Ethics and History of Medicine, University of Zurich, Zurich, Switzerland.
Harvard Medical School, Boston, MA, United States of America.
Swiss Med Wkly. 2014 Oct 15;144:w14039. doi: 10.4414/smw.2014.14039. eCollection 2014.
Decision-making capacity (DMC) is an indispensable prerequisite for patients' informed consent and therefore directly related to the right to self-determination. In view of this ethical implication, valid and reliable assessment of DMC is essential to best practice. In general, and with particular regard to the Swiss context, little is known about healthcare practitioners' knowledge of and attitudes to the concept of DMC, or about their assessment practice. The present study aims to close this gap.
A randomised representative sample of 3,500 physicians, including all specialisms and from all parts of Switzerland, were contacted by mail and invited to complete a survey questionnaire, which was specifically designed for the purpose of the study.
A total of 763 questionnaires were included for analysis (response rate: 22.15%). Physicians diverged in their general understanding of DMC as either a dichotomous or a gradual concept, and in relation to the conceptual challenges of decisional relativity and risk-relativity. Along with cognitive abilities, emotional, intuitive, or evaluative factors were acknowledged as important criteria. DMC was most often assessed implicitly: explicit assessments, if conducted, depended mainly on unstructured interviews. A discrepancy was identified between physicians' perceptions of responsibility and qualification, indicating a related need for more guidance and training.
The conceptual and practical challenges of DMC are far from being resolved. There is a clear need for more guidance in this area in the form of guidelines, tools, and training.
决策能力(DMC)是患者知情同意的不可或缺的前提条件,因此与自决权直接相关。鉴于这一伦理意义,对DMC进行有效且可靠的评估对于最佳实践至关重要。总体而言,尤其是在瑞士的背景下,对于医疗从业者对DMC概念的了解和态度,以及他们的评估实践知之甚少。本研究旨在填补这一空白。
通过邮件联系了3500名来自瑞士各地、涵盖所有专业领域的医生的随机代表性样本,并邀请他们填写一份专门为该研究设计的调查问卷。
共纳入763份问卷进行分析(回复率:22.15%)。医生们对DMC的总体理解存在差异,有人将其视为二分概念,有人则视为渐进概念,在决策相对性和风险相对性的概念挑战方面也存在分歧。除了认知能力外,情感、直觉或评估因素也被认为是重要标准。DMC的评估大多是隐性的:如果进行明确评估,主要依赖非结构化访谈。研究发现医生对责任和资质的认知之间存在差异,这表明在这方面需要更多的指导和培训。
DMC的概念和实践挑战远未得到解决。显然需要以指南、工具和培训的形式在这一领域提供更多指导。