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晚期癌症男性患者对男子气概的认知与其实际生活体验:一项质性现象学研究。

The lived experience of men with advanced cancer in relation to their perceptions of masculinity: a qualitative phenomenological study.

作者信息

Stapleton Sarah, Pattison Natalie

机构信息

Drug Development Unit, The Royal Marsden, Sutton, UK.

出版信息

J Clin Nurs. 2015 Apr;24(7-8):1069-78. doi: 10.1111/jocn.12713. Epub 2014 Oct 16.

Abstract

AIMS AND OBJECTIVES

The aim of this exploratory research was to understand how men experience their advanced cancer in relation to their perceptions of masculinity.

BACKGROUND

There are differences in the way men and women experience illness and health care. There are inequalities in incidence and morbidities of many diseases as well as differences in rates of help-seeking behaviours. Theories on masculinity offer some explanation towards this. Men's experiences of advanced cancer in relation to masculinity are under reported, published literature suggests that there are certain issues or men dealing with advanced disease that justify investigation.

DESIGN

A Qualitative approach using a Husserlian Phenomenological design was conducted.

SAMPLE

Eight men (aged 26-68) all with advanced cancer, defined as advanced or metastatic disease for which the patient had exhausted all standard therapeutic options.

METHODS

In-depth interviews were conducted to capture narratives of the experiences of men. Data were analysed using Colaizzi's seven stage framework.

RESULTS

Themes included thwarted ambition, changing expectations, protection and provision, stoicism and coping, images of illness versus images of masculinity, importance of being a fighter and loss.

CONCLUSION

Findings showed that the experiences of these men were complex and should be handled sensitively. Ideas for gender-specific interventions and further research were developed from the findings in relation to current literature.

RELEVANCE TO CLINICAL PRACTICE

A better understanding and awareness of this in this context will help nurses to consider more subtle challenges that these patients may be dealing with that in turn could affect how they cope with the burden of cancer.

摘要

目的与目标

这项探索性研究的目的是了解男性如何根据他们对男子气概的认知来体验晚期癌症。

背景

男性和女性体验疾病及医疗保健的方式存在差异。许多疾病在发病率和患病率方面存在不平等现象,寻求帮助行为的发生率也有所不同。关于男子气概的理论对此提供了一些解释。关于男性在男子气概方面对晚期癌症的体验报道不足,已发表的文献表明,有一些特定问题或正在应对晚期疾病的男性值得研究。

设计

采用胡塞尔现象学设计的定性研究方法。

样本

八名男性(年龄在26 - 68岁之间),均患有晚期癌症,定义为患者已用尽所有标准治疗方案的晚期或转移性疾病。

方法

进行深入访谈以获取男性经历的叙述。使用科莱齐的七阶段框架对数据进行分析。

结果

主题包括受挫的抱负、不断变化的期望、保护与供给、坚忍与应对、疾病形象与男子气概形象、成为斗士的重要性以及失落。

结论

研究结果表明,这些男性的经历很复杂,应予以敏感对待。根据研究结果并结合当前文献,提出了针对性别干预和进一步研究的想法。

与临床实践的相关性

在这种背景下更好地理解和认识这一点将有助于护士考虑这些患者可能面临的更微妙的挑战,而这些挑战反过来可能会影响他们应对癌症负担的方式。

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