Donovan Rhonda, Williams Allison M
Wilfred Laurier University-Brantford, Brantford, Ontario, Canada.
Health Soc Care Community. 2015 Jan;23(1):79-87. doi: 10.1111/hsc.12126. Epub 2014 Oct 20.
The objective of this study was to examine how Vietnamese family caregivers (FCGs) perceive, manage and experience end-of-life care-giving for seriously ill family members. Using an instrumental case study design, this longitudinal qualitative research employed the use of cultural brokers/language interpreters to help ensure that the research was conducted in a culturally-appropriate manner. Participants (n = 18) discussed their experiences of care-giving within the context of a traditional cultural framework, which was found to influence their motivations and approaches to care-giving, as well as their propensities towards the use of various supports and services. The study was carried out in southern Ontario, Canada, and participants were providing home-based care-giving in the community. Data were collected throughout 2010 and 2011. The ways in which care-giving was perceived and expressed are reflected in three themes: (i) Natural: identity and care work; (ii) Intentional: whole-person care; and (iii) Intensive: standards, struggle and the context of care. This research confirms the need for culturally-appropriate services and supports while illustrating that Vietnamese FCGs not only value, but are also likely to use healthcare and social services if they are language-accessible, built on trust and demonstrate respect for their values as individuals, regardless of culture.
本研究的目的是考察越南家庭照顾者如何看待、管理和体验为重病家庭成员提供的临终照顾。采用工具性案例研究设计,这项纵向定性研究借助文化中介/语言口译员,以确保研究在文化上以恰当的方式进行。参与者(n = 18)在传统文化框架的背景下讨论了他们的照顾经历,发现该框架影响他们照顾的动机和方式,以及他们使用各种支持和服务的倾向。该研究在加拿大安大略省南部开展,参与者在社区中提供居家照顾。数据于2010年和2011年全年收集。照顾的认知和表达方式体现在三个主题中:(i)自然:身份认同与照顾工作;(ii)有意:全人照顾;(iii)深入:标准、挣扎与照顾背景。本研究证实了提供文化上恰当的服务和支持的必要性,同时表明越南家庭照顾者不仅重视医疗保健和社会服务,而且如果这些服务语言可达、基于信任并尊重他们作为个体的价值观(无论文化背景如何),他们也很可能会使用这些服务。