DeMatteo Carol, Bain James R, Gjertsen Deborah, Harper Jessica A
McMaster Children's Hospital, McMaster University, Hamilton, Ontario; ; School of Rehabilitation Science, McMaster University, Hamilton, Ontario; ; CanChild Centre for Childhood Disability Research, McMaster University, Hamilton, Ontario;
McMaster Children's Hospital, McMaster University, Hamilton, Ontario; ; Division of Plastic Surgery, Department of Surgery, McMaster University, Hamilton, Ontario.
Plast Surg (Oakv). 2014 Fall;22(3):183-7.
Obstetrical brachial plexus injury (OBPI) in children can cause great distress to a family due to uncertain recovery, variability in spontaneous recovery and unclear indicators for surgery.
To investigate the impact of having a child with OBPI on the family and whether the Impact on Family Scale (IoFS) can assist in addressing family concerns.
A mixed-method (cross-sectional survey and semistructured interviews) study design was used.
Thirty-eight families of children with OBPI completed the IoFS. Surgery significantly predicted a higher IoFS total impact score (P=0.02). No statistically significant association between the total impact score and severity or age was found, suggesting that impact on family was not dependent on these factors. Themes that emerged from the interviews included traumatic birthing experience, wondering and waiting, and experiencing surgery.
All families should receive support and acknowledgement of the widespread impact of OBPI.
儿童产科臂丛神经损伤（OBPI）由于恢复情况不确定、自发恢复的变异性以及手术指标不明确，会给家庭带来极大困扰。
探讨孩子患有OBPI对家庭的影响，以及家庭影响量表（IoFS）是否有助于解决家庭关切问题。
采用混合方法（横断面调查和半结构化访谈）研究设计。
38名患有OBPI儿童的家庭完成了家庭影响量表。手术显著预测了更高的家庭影响量表总影响得分（P = 0.02）。未发现总影响得分与严重程度或年龄之间存在统计学上的显著关联，这表明对家庭的影响不取决于这些因素。访谈中出现的主题包括创伤性分娩经历、疑惑与等待以及经历手术。
所有家庭都应得到支持，并认识到OBPI的广泛影响。
