Kenning Cassandra, Fisher Louise, Bee Penny, Bower Peter, Coventry Peter
NIHR School for Primary Care Research, Centre for Primary Care, Institute of Population Health, University of Manchester, Manchester, UK; Manchester Academic Health Science Centre (MAHSC), University of Manchester, Manchester, UK.
NIHR School for Primary Care Research, Centre for Primary Care, Institute of Population Health, University of Manchester, Manchester, UK.
SAGE Open Med. 2013 Oct 26;1:2050312113510001. doi: 10.1177/2050312113510001. eCollection 2013.
The aim of this article is to offer insight into how professionals and patients understand and experience multimorbidity and how these accounts differ, and how they affect attitudes and engagement with self-management.
Semi-structured interviews with 20 primary healthcare practitioners and 20 patients with at least 2 long-term conditions (including coronary heart disease, diabetes, osteoarthritis, chronic obstructive pulmonary disease and depression). Thematic analysis was used, and themes were identified using an open-coding method.
Practitioners associated multimorbidity with complexity and uncertainty in the clinic, leading to emotional strain and 'heart sink'. Patient accounts differed. Some described multimorbidity as problematic when it exacerbated their symptoms and caused emotional and psychological strain. Others did not perceive multimorbidity as problematic. Self-management was seen by practitioners and patients to be a key element of managing multiple conditions, but drivers for prompting and engaging in self-management differed between patients and practitioners.
This study suggests that recommendations for clinical practice for multimorbid patients should take into account the gap in perceptions between practitioner and patients about experiences of multimorbidity. Not least, practice would need to reflect the tension between practitioners' and patients' accounts about the role and benefits of self-management in the presence of multimorbidity.
本文旨在深入探讨专业人员和患者如何理解和体验多重疾病,以及这些描述有何不同,以及它们如何影响对自我管理的态度和参与度。
对20名初级医疗保健从业者和20名患有至少两种长期疾病(包括冠心病、糖尿病、骨关节炎、慢性阻塞性肺疾病和抑郁症)的患者进行半结构化访谈。采用主题分析法,使用开放编码方法确定主题。
从业者将多重疾病与临床中的复杂性和不确定性联系起来,导致情绪紧张和“心沉”感。患者的描述则有所不同。一些人认为当多重疾病加剧他们的症状并造成情绪和心理压力时,它是有问题的。另一些人则不认为多重疾病有问题。从业者和患者都认为自我管理是管理多种疾病的关键要素,但促使患者进行自我管理的驱动因素在患者和从业者之间有所不同。
本研究表明,针对患有多重疾病患者的临床实践建议应考虑到从业者和患者对多重疾病体验的认知差距。尤其是,实践需要反映从业者和患者在多重疾病情况下对自我管理的作用和益处的描述之间的紧张关系。