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应对与埃博拉相关的污名化:从艾滋病毒/艾滋病中吸取的教训。

Addressing Ebola-related stigma: lessons learned from HIV/AIDS.

作者信息

Davtyan Mariam, Brown Brandon, Folayan Morenike Oluwatoyin

机构信息

Department of Population Health & Disease Prevention, University of California, Irvine, CA, USA.

Department of Population Health & Disease Prevention, University of California, Irvine, CA, USA;

出版信息

Glob Health Action. 2014 Nov 7;7:26058. doi: 10.3402/gha.v7.26058. eCollection 2014.

Abstract

BACKGROUND

HIV/AIDS and Ebola Virus Disease (EVD) are contemporary epidemics associated with significant social stigma in which communities affected suffer from social rejection, violence, and diminished quality of life.

OBJECTIVE

To compare and contrast stigma related to HIV/AIDS and EVD, and strategically think how lessons learned from HIV stigma can be applied to the current EVD epidemic.

METHODS

To identify relevant articles about HIV/AIDS and EVD-related stigma, we conducted an extensive literature review using multiple search engines. PubMed was used to search for relevant peer-reviewed journal articles and Google for online sources. We also consulted the websites of the World Health Organization (WHO), Centers for Disease Control and Prevention (CDC), and the National Institutes of Health to retrieve up-to-date information about EVD and HIV/AIDS.

RESULTS

Many stigmatizing attitudes and behaviors directed towards those with EVD are strikingly similar to those with HIV/AIDS but there are significant differences worthy of discussion. Both diseases are life-threatening and there is no medical cure. Additionally misinformation about affected groups and modes of transmission runs rampant. Unlike in persons with EVD, historically criminalized and marginalized populations carry a disproportionately higher risk for HIV infection. Moreover, mortality due to EVD occurs within a shorter time span as compared to HIV/AIDS.

CONCLUSIONS

Stigma disrupts quality of life, whether it is associated with HIV infection or EVD. When addressing EVD, we must think beyond the immediate clinical therapeutic response, to possible HIV implications of serum treatment. There are emerging social concerns of stigma associated with EVD infection and double stigma associated with EVD and HIV infection. Drawing upon lessons learned from HIV, we must work to empower and mobilize prominent members of the community, those who recovered from the disease, and organizations working at the grassroots level to disseminate clear and accurate information about EVD transmission and prevention while promoting stigma reduction in the process. In the long run, education, prevention, and a therapeutic vaccine will be the optimal solutions for reducing the stigma associated with both EVD and HIV.

摘要

背景

艾滋病毒/艾滋病和埃博拉病毒病(EVD)是当代流行病,伴随着严重的社会污名,受影响社区遭受社会排斥、暴力,生活质量下降。

目的

比较和对比与艾滋病毒/艾滋病和埃博拉病毒病相关的污名,并从战略上思考如何将从艾滋病毒污名中吸取的经验教训应用于当前的埃博拉病毒病疫情。

方法

为识别与艾滋病毒/艾滋病和埃博拉病毒病相关污名的相关文章,我们使用多个搜索引擎进行了广泛的文献综述。利用PubMed搜索相关的同行评审期刊文章,利用谷歌搜索在线资源。我们还查阅了世界卫生组织(WHO)、疾病控制与预防中心(CDC)和美国国立卫生研究院的网站,以获取有关埃博拉病毒病和艾滋病毒/艾滋病的最新信息。

结果

许多针对埃博拉病毒病患者的污名化态度和行为与针对艾滋病毒/艾滋病患者的惊人相似,但也存在值得讨论的显著差异。这两种疾病都危及生命且无法治愈。此外,关于受影响群体和传播方式的错误信息泛滥。与埃博拉病毒病患者不同,历史上被定罪和边缘化的人群感染艾滋病毒的风险高得多。而且,与艾滋病毒/艾滋病相比,埃博拉病毒病导致的死亡发生在更短的时间内。

结论

污名会破坏生活质量,无论其与艾滋病毒感染还是埃博拉病毒病相关。在应对埃博拉病毒病时,我们必须超越即时的临床治疗反应,考虑血清治疗对艾滋病毒可能产生的影响。出现了与埃博拉病毒病感染相关的污名以及与埃博拉病毒病和艾滋病毒感染相关的双重污名等社会问题。借鉴从艾滋病毒中吸取的经验教训,我们必须努力增强并动员社区中的知名人士、从疾病中康复的人以及基层组织,以传播关于埃博拉病毒病传播和预防的清晰准确信息,同时在此过程中促进减少污名。从长远来看,教育、预防和治疗性疫苗将是减少与埃博拉病毒病和艾滋病毒相关污名的最佳解决方案。

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