Goldenberg David, Payne Laura A, Hayes Loran P, Zeltzer Lonnie K, Tsao Jennie Ci
Geisel School of Medicine at Dartmouth, Hanover, New Hampshire.
UCLA Pediatric Pain Program, David Geffen School of Medicine, Los Angeles, California.
J Pain Manag. 2013 Jan;6(1):61-68.
Pain in children can become chronic and disabling, associated with high degrees of social isolation from schooling absences, physical limitations that prevent participation in social settings, and difficulties forming self-identity. This lack of social support network impairs social coping skills and can lead to worsening pain symptoms.
In this case study, we describe a new program to disrupt the cycle of social isolation and chronic pain by emphasizing social coping skills via peer mentorship. The program aimed to utilize peers who have learned to self-manage their own chronic pain to assist patients with social coping skills to reduce isolation caused by chronic pain conditions.
Children and adolescents with chronic pain.
This case describes the experience of a 17 year-old, African American boy with diffuse chronic body pain as a participant ("the mentee") in the program; his mentor was a 19 year-old girl with chronic pain associated with rheumatoid arthritis. The mentor received six hours of training and she mentored the patient in 10 weekly sessions.
The mentee connected very well with his mentor through sharing similar pain experiences. He demonstrated improvements in positive affect, sleep, social coping, and perception of bodily pain on a variety of quantitative measures. Qualitative data from interviews also suggested that the mentee learned important social coping skills through peer mentorship.
A peer mentoring approach to chronic pain may help alleviate social isolation in adolescents and result in improvements in a number of associated symptoms.
儿童疼痛可能会发展为慢性疼痛并导致功能障碍,这与因缺课导致的高度社会隔离、妨碍参与社交活动的身体限制以及自我认同形成困难有关。这种社会支持网络的缺失会损害社会应对技能,并可能导致疼痛症状恶化。
在本案例研究中,我们描述了一个新的项目,该项目通过同伴指导强调社会应对技能,以打破社会隔离和慢性疼痛的循环。该项目旨在利用那些已学会自我管理自身慢性疼痛的同伴,帮助患者掌握社会应对技能,以减少慢性疼痛状况导致的隔离。
患有慢性疼痛的儿童和青少年。
本案例描述了一名17岁非裔美国男孩作为该项目参与者(“受指导者”)的经历,他患有弥漫性慢性全身疼痛;他的指导者是一名19岁患有类风湿性关节炎相关慢性疼痛的女孩。指导者接受了6小时的培训,并在10次每周的课程中指导该患者。
受指导者通过分享相似的疼痛经历与他的指导者建立了很好的联系。他在各种定量测量中,在积极情绪、睡眠、社会应对和身体疼痛感知方面都有改善。访谈的定性数据也表明,受指导者通过同伴指导学到了重要的社会应对技能。
针对慢性疼痛的同伴指导方法可能有助于减轻青少年的社会隔离,并改善一些相关症状。