使用社交媒体收集乳糜泻患者自我报告结局的原理。
Rationale for Using Social Media to Collect Patient-Reported Outcomes in Patients with Celiac Disease.
作者信息
Park Kt, Harris Merissa, Khavari Nasim, Khosla Chaitan
机构信息
Division of Gastroenterology, Hepatology, and Nutrition, Department of Pediatrics, Stanford University School of Medicine, Stanford, CA, USA ; Center for Health Policy/Primary Care Outcomes Research, Stanford University, Stanford, CA, USA.
School of Medicine, George Washington University, District of Columbia, USA.
出版信息
J Gastrointest Dig Syst. 2014 Feb;4(1). doi: 10.4172/2161-069X.1000166.
Patients with celiac disease (CD) are increasingly interconnected through social media, exchanging patient experiences and health-tracking information between individuals through various web-based platforms. Social media represents potentially unique communication interface between gastroenterologists and active social media users - especially young adults and adolescents with celiac disease-regarding adherence to the strict gluten-free diet, gastrointestinal symptoms, and meaningful discussion about disease management. Yet, various social media platforms may be underutilized for research purposes to collect patient-reported outcomes data. In this commentary, we summarize the scientific rationale and potential for future growth of social media in patient-reported outcomes research, focusing on college freshmen with celiac disease as a case study and provide overview of the methodological approach. Finally, we discuss how social media may impact patient care in the future through increasing mobile technology use.
患有乳糜泻（CD）的患者通过社交媒体越来越紧密地联系在一起，他们通过各种基于网络的平台在个人之间交流患者经历和健康追踪信息。社交媒体代表了胃肠病学家与活跃的社交媒体用户（尤其是患有乳糜泻的年轻人和青少年）之间关于坚持严格无麸质饮食、胃肠道症状以及有关疾病管理的有意义讨论的潜在独特沟通界面。然而，各种社交媒体平台可能未得到充分利用，无法用于收集患者报告结局数据的研究目的。在这篇评论中，我们总结了社交媒体在患者报告结局研究中的科学原理和未来增长潜力，以患有乳糜泻的大学新生作为案例研究，并概述了方法学方法。最后，我们讨论社交媒体未来如何通过增加移动技术的使用来影响患者护理。
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