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患有乳糜泻的成年患者对无麸质饮食的依从性是否受其对食物麸质含量的了解影响?

Is Adherence to a Gluten-Free Diet by Adult Patients With Celiac Disease Influenced by Their Knowledge of the Gluten Content of Foods?

作者信息

Paganizza Stefania, Zanotti Renzo, DʼOdorico Anna, Scapolo Paola, Canova Cristina

机构信息

Stefania Paganizza, MSN, RN, is with Department of Surgery, S. Antonio Hospital, Padova, Italy. Renzo Zanotti, PhD, is with Department of Molecular Medicine, University of Padova, Padova, Italy. Anna D'Odorico, MD, is with Department of Surgical, Oncological and Gastroenterological Sciences, University of Padova, Padova, Italy. Paola Scapolo, BSND, is with UOC Dietetics and Clinical Nutrition, Azienda Ospedaliera Padova, Padova, Italy. Cristina Canova, PhD, is with Department of Molecular Medicine, University of Padova, Padova, Italy; Department of Cardiac, Thoracic and Vascular Sciences and PublicHealth, University of Padova, Padova, Italy.

出版信息

Gastroenterol Nurs. 2019 Jan/Feb;42(1):55-64. doi: 10.1097/SGA.0000000000000368.

Abstract

The aim of this study was to investigate adherence to a gluten-free diet and potentially associated factors, focusing on the relationship between adherence and knowledge of the gluten content of foods and of celiac disease in general. A questionnaire was completed by adult patients diagnosed with celiac disease including demographics, dietary practices, sources of information, and attitude to the disease. Their knowledge of disease and gluten-free diet was assessed using a newly developed scale comprising 31 statements on celiac disease in general and foods appropriate in a gluten-free diet. A validated questionnaire was used to measure adherence to diet. One hundred four patients with celiac disease took part in the study, 65% of them reported strictly adhering to a gluten-free diet. Factors associated with adherence were membership of the Italian Celiac Association and receiving support from this association, Internet, and social media. Patients' knowledge regarding celiac disease and gluten-free diet was generally poor: one patient answered all questions correctly. Knowledge of celiac disease and gluten-free diet was strongly and significantly associated with adherence to a gluten-free diet. The association between knowledge of celiac disease and gluten-free diet in patients with celiac disease and their adherence to the diet suggests the promotion of education and behavioral programs.

摘要

本研究的目的是调查无麸质饮食的依从性及潜在相关因素,重点关注依从性与食物麸质含量知识以及乳糜泻总体知识之间的关系。对诊断为乳糜泻的成年患者进行问卷调查,内容包括人口统计学信息、饮食习惯、信息来源以及对该疾病的态度。使用新开发的量表评估他们对疾病和无麸质饮食的知识,该量表包含31条关于乳糜泻总体情况和无麸质饮食适宜食物的陈述。使用经过验证的问卷来衡量饮食依从性。104名乳糜泻患者参与了该研究,其中65%报告严格坚持无麸质饮食。与依从性相关的因素包括意大利乳糜泻协会会员身份以及获得该协会、互联网和社交媒体的支持。患者对乳糜泻和无麸质饮食的知识普遍较差:只有一名患者所有问题回答正确。乳糜泻患者对乳糜泻和无麸质饮食的知识与无麸质饮食的依从性密切且显著相关。乳糜泻患者对乳糜泻和无麸质饮食的知识与他们对饮食的依从性之间的关联表明应推广教育和行为项目。

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