Palermo Tonya M, Law Emily F, Essner Bonnie, Jessen-Fiddick Tricia, Eccleston Christopher
University of Washington ; Seattle Children's Hospital.
Seattle Children's Hospital.
Clin Pract Pediatr Psychol. 2014 Sep;2(3):212-223. doi: 10.1037/cpp0000067.
Research on the experience of parents caring for a child with chronic pain indicates that high levels of parental role stress, feelings of frustration over an inability to help, and psychological distress are common. Moreover, parental distress adversely influences child adjustment to chronic pain. Therefore, intervening with parents of youth with chronic pain may, in turn, result in positive outcomes for children in their ability to engage in positive coping strategies, reduce their own distress, and to function competently in their normal daily lives. Our aim was to adapt an intervention, Problem-Solving Skills Training, previously proven effective in reducing parental distress in other pediatric illness conditions to the population of caregivers of youth with chronic pain. In the first phase, the intervention was adapted based on expert review of the literature and review of parent responses on a measure of pain-related family impact. In the second phase, the intervention was tested in a small group of parents to evaluate feasibility, determined by response to treatment content, ratings of acceptability, and ability to enroll and deliver the treatment visits. This phase included piloting the PSST intervention and all outcome measures at pre-treatment and immediately post-treatment. In an exploratory manner we examined change in parent distress and child physical function and depression from pre- to post-treatment. Findings from this feasibility study suggest that PSST can be implemented with parents of youth with chronic pain, and they find the treatment acceptable.
对照顾慢性疼痛儿童的父母的经历进行的研究表明，父母角色压力水平高、因无法提供帮助而产生的挫败感以及心理困扰很常见。此外，父母的困扰会对孩子适应慢性疼痛产生不利影响。因此，对患有慢性疼痛的青少年的父母进行干预，反过来可能会给孩子们带来积极的结果，使他们能够采用积极的应对策略，减轻自己的困扰，并在正常的日常生活中表现良好。我们的目标是将一种先前已被证明在其他儿科疾病中能有效减轻父母困扰的干预措施——解决问题技能培训，应用于患有慢性疼痛的青少年的照顾者群体。在第一阶段，根据对文献的专家评审以及对父母在一项与疼痛相关的家庭影响测量中的反应的评审，对干预措施进行了调整。在第二阶段，在一小群父母中对干预措施进行了测试，以评估其可行性，可行性由对治疗内容的反应、可接受性评分以及登记和提供治疗访问的能力来确定。这一阶段包括在治疗前和治疗后立即对解决问题技能培训干预措施和所有结果测量指标进行试点。我们以探索性的方式研究了从治疗前到治疗后父母困扰、孩子身体功能和抑郁的变化。这项可行性研究的结果表明，解决问题技能培训可以应用于患有慢性疼痛的青少年的父母，而且他们认为这种治疗是可以接受的。
