Zalonis Ruth, Slota Margaret
Palliative and Support Care Team, Jefferson Regional Medical Center, Pittsburgh, PA.
Carlow University, Pittsburgh.
Clin J Oncol Nurs. 2014 Dec;18(6):707-11. doi: 10.1188/14.CJON.707-711.
This article explores barriers to informed decision making in health care, and it proposes palliative care as one means of responding to the challenge of a widespread lack of autonomy in decision making. Through an exploration of research in the fields of autonomy and palliative care, the advantages of informed decision making and advance care planning by patients with advanced illness are discussed, and the implications for clinical practice and patient outcomes are described. Continuity, collaboration, and communication have a synergistic effect on autonomy. The expectation that the palliative care team will be in constant communication with the attending physician, nurses, and other specialists also promotes autonomous decision making. Patients who receive palliative care may have multiple advantages, including increased survival, improved quality of life, and opportunities for the exercise of autonomy.
本文探讨了医疗保健中知情决策的障碍,并提出姑息治疗是应对决策中普遍缺乏自主性这一挑战的一种方式。通过对自主性和姑息治疗领域研究的探讨,讨论了晚期疾病患者进行知情决策和预先护理规划的优势,并描述了其对临床实践和患者结局的影响。连续性、协作和沟通对自主性具有协同作用。期望姑息治疗团队与主治医生、护士及其他专科医生保持持续沟通也有助于促进自主决策。接受姑息治疗的患者可能有多种益处,包括延长生存期、提高生活质量以及有机会行使自主权。