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残疾、歧视与死亡:对残疾新生儿的救命治疗进行资源分配是否合理?

Disability, discrimination and death: is it justified to ration life saving treatment for disabled newborn infants?

作者信息

Wilkinson Dominic, Savulescu Julian

出版信息

Monash Bioeth Rev. 2014 Mar-Jun;32(1-2):43-62. doi: 10.1007/s40592-014-0002-y.

DOI:10.1007/s40592-014-0002-y
PMID:25434064
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC4210721/
Abstract

Disability might be relevant to decisions about life support in intensive care in several ways. It might affect the chance of treatment being successful, or a patient's life expectancy with treatment. It may affect whether treatment is in a patient's best interests. However, even if treatment would be of overall benefit it may be unaffordable and consequently unable to be provided. In this paper we will draw on the example of neonatal intensive care, and ask whether or when it is justified to ration life-saving treatment on the basis of disability. We argue that predicted disability is relevant both indirectly and directly to rationing decisions.

摘要

残疾可能在几个方面与重症监护中的生命支持决策相关。它可能会影响治疗成功的几率,或患者接受治疗后的预期寿命。它可能会影响治疗是否符合患者的最大利益。然而,即使治疗总体上有益,但可能费用过高,因此无法提供。在本文中,我们将以新生儿重症监护为例,探讨基于残疾来分配救命治疗是否合理以及何时合理。我们认为,预测的残疾与分配决策直接或间接都相关。

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本文引用的文献

1
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J Paediatr Child Health. 2013 Oct;49(10):813-4. doi: 10.1111/jpc.12380.
2
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J Paediatr Child Health. 2013 Oct;49(10):807-12. doi: 10.1111/jpc.12386.
3
Will this be a life worth living.
J Paediatr Child Health. 2013 Oct;49(10):793-4. doi: 10.1111/jpc.12379.
4
Perinatal management of trisomy 18: a survey of obstetricians in Australia, New Zealand and the UK.18三体综合征的围产期管理:对澳大利亚、新西兰和英国产科医生的一项调查。
Prenat Diagn. 2014 Jan;34(1):42-9. doi: 10.1002/pd.4249. Epub 2013 Oct 30.
5
Precision and the rules of prioritization.精准度与优先级规则。
Camb Q Healthc Ethics. 2013 Oct;22(4):336-45. doi: 10.1017/S0963180113000182. Epub 2013 Aug 6.
6
Congenital central hypoventilation syndrome.先天性中枢性低通气综合征。
Respir Physiol Neurobiol. 2013 Nov 1;189(2):272-9. doi: 10.1016/j.resp.2013.05.018. Epub 2013 May 18.
7
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