Mignone Javier, Migliardi Paula, Harvey Carol, Davis Jennifer, Madariaga-Vignudo Lucia, Pindera Carla
J Assoc Nurses AIDS Care. 2015 May-Jun;26(3):235-45. doi: 10.1016/j.jana.2014.09.002. Epub 2014 Sep 28.
We sought to understand the support networks of people living with HIV (PLWH) in the Canadian cities of Winnipeg and Regina, particularly of their network of caregivers and with a focus on people from disadvantaged and/or stigmatized communities. Using a variation of the Photovoice method, 31 study participants took photographs of their everyday realities and were then interviewed. Among the findings was the heavy reliance on institutional caregivers and on nonhuman sources of support. There was evidence of peer-to-peer networks of care, but the strongest connections were with their formal caregivers. HIV as a chronic condition among disadvantaged and/or stigmatized groups requires paying special attention to informal and formal care dynamics and to where social or family networks cannot meet the basic needs. Honing in on and enhancing these features through programs and services can only improve the situation of stigmatized yet hopeful and resilient PLWH.
我们试图了解加拿大温尼伯市和里贾纳市的艾滋病毒感染者（PLWH）的支持网络，特别是他们的护理人员网络，并重点关注来自弱势和/或受污名化社区的人群。采用一种变体的摄影声音方法，31名研究参与者拍摄了他们的日常现实情况，然后接受了采访。研究结果包括对机构护理人员和非人力支持来源的严重依赖。有证据表明存在同伴互助护理网络，但最紧密的联系是与他们的正式护理人员。艾滋病毒在弱势和/或受污名化群体中作为一种慢性病，需要特别关注非正式和正式护理动态，以及社会或家庭网络无法满足基本需求的情况。通过项目和服务来突出并加强这些特点，只会改善受污名化但充满希望且坚韧的艾滋病毒感染者的状况。
