Chambers Henry G, Chambers Jill A
Rady Children's Hospital, San Diego, University of California San Diego, 3030 Children's Way, Suite 410, San Diego, CA 92123, USA.
Rady Children's Hospital, San Diego, San Diego, CA, USA.
Phys Med Rehabil Clin N Am. 2015 Feb;26(1):1-19. doi: 10.1016/j.pmr.2014.09.004.
Parents of children with disabilities encounter stresses unlike those of families with typically developing children. Medical professionals must appreciate that they are not only treating the child but also the family. A state-of-the-art understanding of their patient's disability is implied, but they must also understand the dynamics of raising a child with a disability, appreciate the different models of health care delivery, and provide guidance in transition to adulthood in healthcare as well as life (education, living arrangements, conservancy, etc). An awareness of the physical and mental health impacts on the parents of a child with a chronic disability should also be appreciated.
残疾儿童的父母所面临的压力与发育正常儿童家庭的压力不同。医学专业人员必须认识到，他们不仅要治疗孩子，还要照顾整个家庭。这意味着要对患者的残疾情况有最新的了解，但他们还必须了解抚养残疾儿童的动态过程，理解不同的医疗保健模式，并在医疗保健以及生活（教育、生活安排、监护等）方面为向成年期过渡提供指导。还应认识到慢性残疾儿童对其父母身心健康的影响。
