School of Nursing and Midwifery, Trinity College Dublin, Dublin, Ireland.
J Pediatr Nurs. 2012 Dec;27(6):642-51. doi: 10.1016/j.pedn.2011.07.003. Epub 2011 Sep 6.
This qualitative phenomenological study explored mothers' experiences of caring for a child with complex needs. After ethical approval was obtained, data were collected through 11 diaries and 48 interviews with 17 mothers in Ireland. Caring for a child with complex needs involves the delivery of care in an inside world of the home, the world outside the home, and a "going-between" world. Caregiving, 1 of 8 closely linked dimensions, is presented, including its 4 categories. These are normal mothering, technical caregiving, preemptive caregiving, and individualized caregiving. Professionals require a greater understanding of the experiences of mothers caring for children with complex needs at home.
本定性现象学研究探讨了母亲照顾有复杂需求的孩子的体验。在获得伦理批准后，通过 17 位爱尔兰母亲的 11 份日记和 48 次访谈收集了数据。照顾有复杂需求的孩子涉及在家中的内部世界、家庭之外的世界和“中间人”世界中提供护理。作为 8 个紧密相连的维度之一的护理，包括其 4 个类别，被呈现出来。这些类别包括正常育子、技术护理、预防性护理和个性化护理。专业人员需要更深入地了解在家中照顾有复杂需求的孩子的母亲的体验。
