Neugroschl Judith, Sano Mary, Luo Xiaodong, Sewell Margaret
Alzheimer's Disease Research Center, Department of Psychiatry, Icahn School of Medicine at Mount Sinai, New York, NY, USA.
Alzheimer's Disease Research Center, Department of Psychiatry, Icahn School of Medicine at Mount Sinai, New York, NY, USA ; James J. Peters VA Medical Center, Bronx, NY, USA.
J Gerontol Geriatr Res. 2014 Oct;3(4). doi: 10.4172/2167-7182.1000170.
Retaining participants in longitudinal research in aging and Alzheimer's disease remains a significant challenge. "Study partners" are often required to insure participation and accuracy of information because cognitive impairment may interfere with accurate reporting. The purpose of the present report was to identify attitudes and reasons for continued participation in observational research.
53 individuals (33 participants and 20 study partners) who were participating in the longitudinal cohort at the Mount Sinai Alzheimer's Disease Research Center were available for this survey. They were asked a single open-ended question about why they continued in our study. Seven categories of answers (e.g., Altruism, Value relationship with staff, and Concern about health) were identified and frequency of endorsement was summarized for participants and study partners separately.
There were 82 responses from the 53 individuals. Forty five percent of the participants and 55% of the study partners identified altruism as one reason they participate in research over time, and 75% of study partners and 30% of participants mentioned valuing the relationship with staff as a reason they stayed in research.
This data suggests that retention efforts should be directed toward fostering strong relationships between research staff and study participants and reinforcing the opportunity to contribute to others, which fosters a sense of altruism.
在衰老与阿尔茨海默病纵向研究中留住参与者仍然是一项重大挑战。由于认知障碍可能会干扰信息的准确报告，因此通常需要“研究伙伴”来确保参与度和信息准确性。本报告的目的是确定继续参与观察性研究的态度和原因。
参与西奈山阿尔茨海默病研究中心纵向队列研究的53人（33名参与者和20名研究伙伴）参与了此次调查。他们被问及一个关于为何继续参与我们研究的开放式问题。确定了七类答案（例如，利他主义、重视与工作人员的关系以及对健康的关注），并分别总结了参与者和研究伙伴认可这些答案的频率。
53人共给出了82条回答。45%的参与者和55%的研究伙伴认为利他主义是他们长期参与研究的一个原因，75%的研究伙伴和30%的参与者提到重视与工作人员的关系是他们留在研究中的一个原因。
这些数据表明，留住参与者的努力应致力于促进研究人员与研究参与者之间建立牢固的关系，并强化为他人做贡献的机会，这会培养一种利他主义意识。
