Rimmer Ruth Brubaker, Bay R Curt, Alam Now Bahar, Sadler Ian J, Richey Karen J, Foster Kevin N, Caruso Daniel M, Rosenberg David
From the *Department of Surgery, Arizona Burn Center at Maricopa Medical Center, Phoenix; †A.T. Still University, Kirksville, Missouri; and ‡Department of Pediatrics, Maricopa Medical Center, Phoenix, Arizona.
J Burn Care Res. 2015 May-Jun;36(3):421-7. doi: 10.1097/BCR.0000000000000095.
This study sought to identify which commonly experienced burn-related issues parents/caregivers of burn-injured youth deemed most stressful, difficult, and disruptive during their child's initial acute burn care hospitalization, and following the child's discharge. Parents completed an 11-item survey, asking them to rate the difficulty of items regarding their child's burn injury. The scale was created by burn doctors, nurses, and psychologists with an average of 10.5 (SD ± 4.8) years of experience. Items selected were among common parental problems reported in the burn literature. Respondents included 69 parents/caregivers of previously hospitalized, burn-injured youth. The majority were mothers, n = 51 (74%), and n = 34 (49%) were Caucasian. The most represented age group was 37 to 45 years, n = 31 (45%). Children were on average, 6.04 years out from their initial injury. All parents reported their child's pain as the most difficult part of the injury, n = 69 (100%). The second most common issue was the child's first hospital stay. The other two items found to be "very hard" or "pretty hard" were the time spent away from their other children, and feelings of hopelessness in being unable to fix everything for their child. In this study, key parental problems occurred during the child's initial hospitalization. Burn staff cannot alleviate all problems, however, staff education regarding distressing problems faced by parents, as well as possible solutions, can be made available.
本研究旨在确定在儿童首次急性烧伤护理住院期间以及出院后，烧伤青少年的父母/照顾者认为哪些常见的烧伤相关问题最具压力、最困难且最具干扰性。父母完成了一项包含11个条目的调查，要求他们对与孩子烧伤相关条目的难度进行评分。该量表由烧伤医生、护士和心理学家编制，他们平均拥有10.5（标准差±4.8）年的经验。所选条目均来自烧伤文献中报道的常见父母问题。受访者包括69名曾住院治疗的烧伤青少年的父母/照顾者。大多数是母亲，n = 51（74%），n = 34（49%）是白种人。最具代表性的年龄组是37至45岁，n = 31（45%）。儿童自初次受伤以来平均已有6.04年。所有父母都表示孩子的疼痛是受伤最困难的部分，n = 69（100%）。第二常见的问题是孩子的首次住院。另外两个被认为“非常困难”或“相当困难”的条目是与其他孩子分离的时间，以及因无法为孩子解决一切问题而产生的绝望感。在本研究中，关键的父母问题发生在孩子初次住院期间。烧伤医护人员无法缓解所有问题，然而，可以提供有关父母面临的困扰问题以及可能解决方案的员工培训。
