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Healthcare (Basel). 2024 Mar 8;12(6):614. doi: 10.3390/healthcare12060614.
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Pediatric Burns: A Systematic Review and Meta-Analysis on Epidemiology, Gender Distribution, Risk Factors, Management, and Outcomes in Emergency Departments.小儿烧伤:急诊科流行病学、性别分布、危险因素、治疗及结局的系统评价与荟萃分析
Cureus. 2023 Nov 18;15(11):e49012. doi: 10.7759/cureus.49012. eCollection 2023 Nov.
4
"It's a big trauma for the family": A qualitative insight into the psychological trauma of paediatric burns from the perspective of mothers.“这对整个家庭来说是一个巨大的创伤”:从母亲的角度看儿科烧伤的心理创伤。
Burns. 2024 Feb;50(1):262-274. doi: 10.1016/j.burns.2023.06.014. Epub 2023 Jun 28.
5
Parents' lived experience of living with and caring for their burn-injured child in a home setting.父母在家中照顾烧伤儿童的生活体验。
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6
Physical, Psychological, and Social Outcomes in Pediatric Burn Survivors Ages 5 to 18 Years: A Systematic Review.儿童烧伤幸存者 5 至 18 岁的身体、心理和社会结局:系统评价。
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7
Influential Factors in the Recovery Process of Burn Survivors in a Predominately Rural State: A Qualitative Study.主要为农村地区的烧伤幸存者康复过程中的影响因素:一项定性研究。
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Towards a paradigm shift in pediatric rehabilitation: accelerating the uptake of evidence on participation into routine clinical practice.迈向儿科康复范式转变:加速参与证据在常规临床实践中的应用。
Disabil Rehabil. 2022 May;44(9):1746-1757. doi: 10.1080/09638288.2021.1903102. Epub 2021 Apr 8.
9
Parents' lived experiences of parental needs for support at a burn centre.父母在烧伤中心对支持性父母需求的体验。
Int J Qual Stud Health Well-being. 2021 Dec;16(1):1855749. doi: 10.1080/17482631.2020.1855749.
10
Issues and concerns of family members of burn patients: A scoping review.烧伤患者家属的问题和关注点:范围综述。
Burns. 2021 May;47(3):503-524. doi: 10.1016/j.burns.2020.04.023. Epub 2020 May 18.

父母对烧伤儿童的适应:如何在受伤后满足他们的需求。

Parental adjustment to a burn-injured child: how to support their needs in the aftermath of the injury.

作者信息

Cioga Elisabete, Cruz Dulce, Laranjeira Carlos

机构信息

School of Health Sciences, Polytechnic of Leiria, Leiria, Portugal.

Centre for Innovative Care and Health Technology (ciTechCare), Polytechnic of Leiria, Leiria, Portugal.

出版信息

Front Psychol. 2024 Sep 30;15:1456671. doi: 10.3389/fpsyg.2024.1456671. eCollection 2024.

DOI:10.3389/fpsyg.2024.1456671
PMID:39403245
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11471624/
Abstract

The physical pain of a burn is immeasurable, but the pain of seeing a child suffer is indescribable. Childhood burns not only affect the child directly, but also have a significant impact on the parents and the rest of the family. During the acute phase of the burn, the child's main allies in recovery are their parents, so they face emotional turbulence, having to support their children while witnessing the painful procedures they go through. They often feel helpless and distressed because they are unable to protect their children from suffering and have difficulty managing everything they feel. In addition to the often-present feeling of guilt, they also experience sadness and worry, particularly when returning home. After hospital discharge, fears increase, as do the challenges. There is a need to readapt the entire family dynamic to respond to the needs of the burned child who returns home. This readaptation often generates stress and anxiety, interfering with the entire family structure. It is crucial to try to understand these parents and give them all the support they need. Only capable and well-adjusted parents can ensure resilient family environments with safer and calmer children, thus promoting family well-being. In this perspective paper, the authors underline the role of parents of burnt children during the long trajectory of child rehabilitation and recovery. By acknowledging their needs, feelings and challenges healthcare providers can engage and support suffering parents toward more family-centered approach.

摘要

烧伤带来的身体疼痛难以估量,但目睹孩子遭受痛苦的疼痛却无法言表。儿童烧伤不仅直接影响孩子自身,还会对父母及家庭其他成员产生重大影响。在烧伤急性期,孩子康复过程中的主要依靠是他们的父母,因此父母们面临着情绪的动荡,既要支持孩子,又要目睹他们经历痛苦的治疗过程。他们常常感到无助和苦恼,因为无法保护孩子免受痛苦,也难以应对自己的各种感受。除了时常存在的内疚感,他们还会感到悲伤和担忧,尤其是在回家之后。出院后,恐惧增加,挑战也随之而来。需要重新调整整个家庭的动态,以满足回家的烧伤儿童的需求。这种重新调整往往会产生压力和焦虑,干扰整个家庭结构。理解这些父母并给予他们所需的一切支持至关重要。只有有能力且适应良好的父母才能确保家庭环境具有韧性,让孩子更安全、平静,从而促进家庭幸福。在这篇观点论文中,作者强调了烧伤儿童的父母在孩子漫长的康复过程中的作用。通过认识到他们的需求、感受和挑战,医疗保健提供者可以促使并支持受苦的父母采取更以家庭为中心的方法。