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比较学者和公众对患者及公众参与衰老研究的看法。

Comparing the perceptions of academics and members of the public about patient and public involvement in ageing research.

作者信息

Tullo Ellen StClair, Robinson Lisa, Newton Julia

机构信息

Newcastle NIHR Biomedical Research Centre in Ageing and Chronic Disease, Newcastle University, Newcastle upon Tyne, UK.

Department of Physiotherapy, Newcastle upon Tyne Hospitals NHS Foundation Trust, Newcastle upon Tyne, UK.

出版信息

Age Ageing. 2015 May;44(3):533-6. doi: 10.1093/ageing/afu193. Epub 2014 Dec 19.

DOI:10.1093/ageing/afu193
PMID:25527607
Abstract

BACKGROUND

public and patient involvement (PPI) in clinical research is increasingly advocated by funding and regulatory bodies. However, little is known about the views of either academics or members of the public about perceptions of the practical realities of PPI, particularly in relation to ageing research.

OBJECTIVE

to survey current levels of PPI in biomedical and clinical research relating to ageing at one institution. To compare and contrast the views of academics and the public about PPI relating to research about ageing.

DESIGN

electronic survey of senior academics, postgraduate students and members of a local user group for older people.

SETTING AND PARTICIPANTS

thirty-three academics (18 principal investigators and 15 PhD students) at a biomedical research institution. Fifty-four members of a local user group for older people.

RESULTS

thirty per cent (10/33) of projects described some PPI activity. Older adults were more positive about active involvement in research about ageing than academics. The perceived benefits of and barriers to involvement in research were similar among all groups, although older members of the public were more likely than academics to acknowledge potential barriers to involvement.

CONCLUSION

academics and older people share some perceptions about PPI in ageing research, but members of the public are more optimistic about active involvement. Further correspondence between these groups may help to identify feasible involvement activities for older people and encourage collaborative research about ageing.

摘要

背景

资助机构和监管机构越来越提倡公众及患者参与(PPI)临床研究。然而,对于学术界人士或公众对PPI实际情况的看法,尤其是与衰老研究相关的看法,我们知之甚少。

目的

调查一所机构中与衰老相关的生物医学和临床研究中PPI的当前水平。比较和对比学术界人士和公众对与衰老研究相关的PPI的看法。

设计

对资深学者、研究生和当地老年用户群体成员进行电子调查。

地点和参与者

一所生物医学研究机构的33名学者(18名首席研究员和15名博士生)。当地老年用户群体的54名成员。

结果

30%(10/33)的项目描述了一些PPI活动。老年人比学术界人士对积极参与衰老研究更持积极态度。尽管老年公众比学术界人士更有可能认识到参与研究的潜在障碍,但所有群体对参与研究的感知益处和障碍相似。

结论

学术界人士和老年人对衰老研究中的PPI有一些共同看法,但公众对积极参与更为乐观。这些群体之间进一步的沟通可能有助于确定老年人可行的参与活动,并鼓励开展关于衰老的合作研究。

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