AUT Centre for Active Ageing, Faculty of Health and Environmental Sciences, Auckland University of Technology, Auckland, New Zealand.
Age Ageing. 2018 Nov 1;47(6):801-809. doi: 10.1093/ageing/afy092.
patient and public involvement (PPI) in research has been linked with numerous beneficial impacts, however, evidence for older people's involvement is limited.
to evaluate the impacts of involving older people in health and social care research on older co-researchers, academic researchers, and research processes and outcomes. A secondary aim was to explore critical success factors and future considerations for PPI.
systematic review.
six databases were searched for English language articles published between 2006 and 2017. A supplementary search was conducted. Two authors independently retrieved articles using standardised inclusion criteria and data extraction forms. Articles reporting formal evaluation of older people's involvement were included.
nine articles, all using qualitative methodology, were included. Benefits for older co-researchers included psychological and social benefits, new learning, and activism and career opportunities, while challenging impacts comprised demanding workloads, difficult relationships and dissatisfaction with level of involvement. Benefits for academic researchers entailed new learning and shared workloads; challenges related to demanding workloads and difficult relationships. Both positive and negative effects on research quality and impact were observed. Benefits for participants and the community were demonstrated. Building relationships, facilitating communication and breaking down barriers to participation were identified as critical success factors.
evidence for the impacts of older people's involvement is mixed although benefits appear to outweigh the challenges. Future considerations for PPI include matching older people's skills and motivations to the project and level of involvement, and establishing an iterative research process in which evaluation is embedded.
患者和公众参与(PPI)研究与许多有益的影响有关,然而,关于老年人参与的证据有限。
评估让老年人参与健康和社会关怀研究对老年共同研究者、学术研究人员以及研究过程和结果的影响。次要目的是探索 PPI 的关键成功因素和未来考虑因素。
系统评价。
检索了 2006 年至 2017 年期间发表的英文文章的六个数据库。还进行了补充搜索。两位作者使用标准化的纳入标准和数据提取表格独立检索文章。纳入了报告老年人参与正式评估的文章。
纳入了 9 篇文章,均采用定性方法。老年共同研究者的受益包括心理和社会收益、新的学习机会、积极参与和职业机会,而具有挑战性的影响包括工作量大、人际关系困难和对参与程度的不满。学术研究人员的受益包括新的学习机会和分担工作量;挑战与工作量大、人际关系困难有关。观察到对研究质量和影响的积极和消极影响。展示了对参与者和社区的好处。建立关系、促进沟通和打破参与障碍被确定为关键成功因素。
尽管收益似乎超过了挑战,但老年人参与的影响的证据是混合的。未来 PPI 的考虑因素包括将老年人的技能和动机与项目和参与程度相匹配,并建立一个迭代研究过程,其中嵌入评估。