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以患者为中心的结果研究所在患者参与研究方面的概念和实践基础。

Conceptual and practical foundations of patient engagement in research at the patient-centered outcomes research institute.

作者信息

Frank Lori, Forsythe Laura, Ellis Lauren, Schrandt Suzanne, Sheridan Sue, Gerson Jason, Konopka Kristen, Daugherty Sarah

机构信息

Patient-Centered Outcomes Research Institute (PCORI), 1828 L Street NW 9th Floor, Washington, DC, 20036, USA,

出版信息

Qual Life Res. 2015 May;24(5):1033-41. doi: 10.1007/s11136-014-0893-3. Epub 2015 Jan 6.

DOI:10.1007/s11136-014-0893-3
PMID:25560774
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC4412554/
Abstract

PURPOSE

To provide an overview of PCORI's approach to engagement in research.

METHODS

The Patient-Centered Outcomes Research Institute (PCORI) was established in 2010 to fund patient-centered comparative effectiveness research. Requirements for research funding from PCORI include meaningful engagement of patients and other stakeholders in the research. PCORI's approach to engagement in research is guided by a conceptual model of patient-centered outcomes research (PCOR), that provides a structure for understanding engagement in research.

RESULTS

To understand and improve engagement in research PCORI is learning from awardees and other stakeholders. Those efforts are described along with PCORI's capacity building and guidance to awardees via the Engagement Rubric. PCORI's unique model of engaging patients and other stakeholders in merit review of funding applications is also described. Additional support for learning about engagement in research is provided through specific research funding and through PCORI's major infrastructure initiative, PCORnet.

CONCLUSION

PCORI requires engagement of stakeholders in the research it funds. In addition PCORI engages stakeholders in activities including review of funding applications and establishment of CER research infrastructure through PCORnet. The comprehensive approach to engagement is being evaluated to help guide the field toward promising practices in research engagement.

摘要

目的

概述患者为中心的结果研究所（PCORI）参与研究的方法。

方法

患者为中心的结果研究所在2010年成立，旨在资助以患者为中心的比较效果研究。PCORI对研究资金的要求包括患者和其他利益相关者有意义地参与研究。PCORI参与研究的方法以患者为中心的结果研究（PCOR）概念模型为指导，该模型为理解研究参与提供了一个框架。

结果

为了理解和改善研究参与，PCORI正在向获奖者和其他利益相关者学习。这些努力以及PCORI通过参与评分标准对获奖者的能力建设和指导都有描述。还介绍了PCORI让患者和其他利益相关者参与资金申请同行评审的独特模式。通过特定的研究资金以及PCORI的主要基础设施计划PCORnet，为了解研究参与提供了额外支持。

结论

PCORI要求利益相关者参与其资助的研究。此外，PCORI让利益相关者参与包括评审资金申请以及通过PCORnet建立比较效果研究（CER）基础设施等活动。正在对这种全面的参与方法进行评估，以帮助该领域朝着研究参与的良好实践方向发展。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1e94/4412554/1b87b5f35cb4/11136_2014_893_Fig1_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1e94/4412554/1b87b5f35cb4/11136_2014_893_Fig1_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1e94/4412554/1b87b5f35cb4/11136_2014_893_Fig1_HTML.jpg

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