Nass Sharyl J, Beaupin Lynda K, Demark-Wahnefried Wendy, Fasciano Karen, Ganz Patricia A, Hayes-Lattin Brandon, Hudson Melissa M, Nevidjon Brenda, Oeffinger Kevin C, Rechis Ruth, Richardson Lisa C, Seibel Nita L, Smith Ashley W
Institute of Medicine, Washington, D.C., USA; Roswell Park Cancer Institute, Buffalo, New York, USA; University of Alabama at Birmingham Comprehensive Cancer Center, Birmingham, Alabama, USA; Harvard Medical School, Dana-Farber Cancer Institute, Boston, Massachusetts, USA: School of Medicine & Public Health, University of California, Los Angeles, Los Angeles, California, USA; Oregon Health & Science University Knight Cancer Institute, Portland, Oregon, USA; St. Jude Children's Research Hospital, Memphis, Tennessee, USA; Oncology Nursing Society, Pittsburgh, Pennsylvania, USA; Memorial Sloan-Kettering Cancer Center, New York, New York, USA; LIVESTRONG Foundation, Austin, Texas, USA; Centers for Disease Control and Prevention, Atlanta, Georgia, USA; National Cancer Institute, Bethesda, Maryland, USA
Institute of Medicine, Washington, D.C., USA; Roswell Park Cancer Institute, Buffalo, New York, USA; University of Alabama at Birmingham Comprehensive Cancer Center, Birmingham, Alabama, USA; Harvard Medical School, Dana-Farber Cancer Institute, Boston, Massachusetts, USA: School of Medicine & Public Health, University of California, Los Angeles, Los Angeles, California, USA; Oregon Health & Science University Knight Cancer Institute, Portland, Oregon, USA; St. Jude Children's Research Hospital, Memphis, Tennessee, USA; Oncology Nursing Society, Pittsburgh, Pennsylvania, USA; Memorial Sloan-Kettering Cancer Center, New York, New York, USA; LIVESTRONG Foundation, Austin, Texas, USA; Centers for Disease Control and Prevention, Atlanta, Georgia, USA; National Cancer Institute, Bethesda, Maryland, USA.
Oncologist. 2015 Feb;20(2):186-95. doi: 10.1634/theoncologist.2014-0265. Epub 2015 Jan 7.
Cancer is the leading disease-related cause of death in adolescents and young adults (AYAs). This population faces many short- and long-term health and psychosocial consequences of cancer diagnosis and treatment, but many programs for cancer treatment, survivorship care, and psychosocial support do not focus on the specific needs of AYA cancer patients. Recognizing this health care disparity, the National Cancer Policy Forum of the Institute of Medicine convened a public workshop to examine the needs of AYA patients with cancer. Workshop participants identified many gaps and challenges in the care of AYA cancer patients and discussed potential strategies to address these needs. Suggestions included ways to improve access to care for AYAs, to deliver cancer care that better meets the medical and psychosocial needs of AYAs, to develop educational programs for providers who care for AYA cancer survivors, and to enhance the evidence base for AYAs with cancer by facilitating participation in research.
癌症是青少年和青年（AYA）与疾病相关的主要死因。这一人群面临着癌症诊断和治疗带来的许多短期和长期健康及心理社会后果，但许多癌症治疗、生存护理和心理社会支持项目并未关注AYA癌症患者的特殊需求。认识到这一医疗保健差距，美国国家医学院的国家癌症政策论坛召开了一次公开研讨会，以研究AYA癌症患者的需求。研讨会参与者确定了AYA癌症患者护理方面的许多差距和挑战，并讨论了满足这些需求的潜在策略。建议包括改善AYA获得护理的途径、提供更能满足AYA医疗和心理社会需求的癌症护理、为照顾AYA癌症幸存者的医护人员制定教育项目，以及通过促进参与研究来加强针对AYA癌症患者的证据基础。
