Department of Psychiatry and Psychotherapy, University Hospital Carl Gustav Carus, Technical University Dresden, Fetscherstr. 74, 01307 Dresden, Germany ; Department of Psychiatry and Psychotherapy, University of Regensburg, Universitätsstraße 84, 93053 Regensburg, Germany.
State Hospital for Psychiatry, Psychotherapy and Psychosomatics, Prof.-Buchner-Strasse 22, 84034 Landshut, Germany.
Int J Bipolar Disord. 2015 Jan 31;3:2. doi: 10.1186/s40345-015-0021-5. eCollection 2015.
In previous years, research has focused on the situation of psychiatric patients' minor children. The aims of this qualitative study were to describe the experience of adult children of depressed and bipolar patients, including positive and negative factors as well as coping mechanisms, and to investigate possible predictors of burden in order to identify children in need of professional support.
A total of 30 adult children were interviewed using a semi-structured interview. In addition, all children completed the Freiburg Questionnaire of Coping with Disease (Freiburger Fragebogen zur Krankheitsverarbeitung, FKV). Regression analysis indicated the most relevant predictors of burden.
All (100%) of the children reported emotional burden due to the illness of their parent, 90% suffered from impaired family life, and 77% experienced burden due to the parent's symptoms. Reward (positive experience) was reported regarding the intensification of the parent-child relationship. Linear regression analysis shows predictors for highly burdened children as well as for children who are more prone to maladaptive ways of coping. Higher burden was significantly associated with the child's age, severity of illness of the parent, and specific diagnosis.
Although some positive aspects of parental affective disorder exist, this study underlines that children primarily suffer from their parent's disorder and that this burden does not stop in adulthood. Providing professional support to adult as well as to minor children of affected individuals should become standard of care in clinical settings.
在过去的几年中,研究的重点一直是精神病患者未成年子女的情况。本研究旨在描述抑郁和双相情感障碍患者成年子女的经历,包括积极和消极因素以及应对机制,并探讨可能的负担预测因素,以确定需要专业支持的儿童。
采用半结构式访谈对 30 名成年子女进行访谈。此外,所有儿童都完成了弗莱堡疾病应对问卷(Freiburger Fragebogen zur Krankheitsverarbeitung,FKV)。回归分析表明了负担的最相关预测因素。
所有(100%)的儿童都报告了因父母患病而产生的情绪负担,90%的儿童受到家庭生活受损的影响,77%的儿童因父母的症状而感到负担过重。亲子关系的加强被报告为奖励(积极体验)。线性回归分析显示了高负担儿童以及更倾向于适应不良应对方式的儿童的预测因素。更高的负担与儿童的年龄、父母疾病的严重程度和特定诊断显著相关。
尽管父母情感障碍存在一些积极方面,但本研究强调儿童主要受到父母疾病的影响,而且这种负担不会在成年后停止。为受影响个体的成年和未成年子女提供专业支持应成为临床环境中的标准护理。