Sun Kristi, Goodfellow Henry, Konstantara Emmanouela, Hill Alison, Lennard Debby, Lloyd-Dehler Elizabeth, Mughal Muntzer, Pritchard-Jones Kathy, Robson Chris, Murray Elizabeth
Research Department of Primary Care and Population Health, University College London, UK.
University College London Hospital, UK.
Digit Health. 2021 Sep 28;7:20552076211038410. doi: 10.1177/20552076211038410. eCollection 2021 Jan-Dec.
Oesophageal cancer patients have complex care needs. Cancer clinical nurse specialists play a key role in coordinating their care but often have heavy workloads. Digital health interventions can improve patient care but there are few examples for oesophageal cancer. This paper aims to describe the multidisciplinary co-design process of a digital health intervention to improve the experience of care and reduce unmet needs among patients with oesophageal cancer.
A theory-based, multi-disciplinary, co-design approach was used to inform the developmental process of the digital health intervention. Key user needs were elicited using mixed methodology from systematic reviews, focus groups and interviews and holistic need assessments. Overarching decisions were discussed among a core team of patients, carers, health care professionals including oncologists and cancer clinical nurse specialists, researchers and digital health providers. A series of workshops incorporating a summary of findings of key user needs resulted in the development of a minimum viable product. This was further refined after a pilot study based on feedback from end users.
The final digital health intervention consists of a mobile app feature for patients and carers connected to a dashboard with supporting additional features for clinical nurse specialist. It contains a one-way messaging function for clinical nurse specialists to communicate with patients, functions for patients to record weight and holistic need assessment results which could be viewed by their clinical nurse specialists as well as a library of informative articles.
The multidisciplinary co-design of a digital health intervention providing support for oesophageal cancer patients and health care professionals has been described. Future studies to establish its impact on patient outcomes are planned.
食管癌患者有复杂的护理需求。癌症临床护理专家在协调他们的护理方面发挥着关键作用，但工作量往往很大。数字健康干预可以改善患者护理，但食管癌方面的实例很少。本文旨在描述一种数字健康干预的多学科协同设计过程，以改善护理体验并减少食管癌患者未满足的需求。
采用基于理论的多学科协同设计方法为数字健康干预的开发过程提供信息。通过系统评价、焦点小组、访谈以及整体需求评估等混合方法，获取关键用户需求。患者、护理人员、包括肿瘤学家和癌症临床护理专家在内的医疗保健专业人员、研究人员以及数字健康服务提供商组成的核心团队讨论了总体决策。一系列结合关键用户需求调查结果总结的研讨会促成了最小可行产品的开发。在根据最终用户的反馈进行初步研究后，该产品得到了进一步完善。
最终的数字健康干预包括一个面向患者和护理人员的移动应用程序功能，该功能连接到一个仪表板，并为临床护理专家提供支持性附加功能。它包含临床护理专家与患者沟通的单向消息功能、患者记录体重和整体需求评估结果的功能，临床护理专家可以查看这些结果，以及一个信息文章库。
本文描述了一种为食管癌患者和医疗保健专业人员提供支持的数字健康干预的多学科协同设计。计划开展未来研究以确定其对患者结局的影响。
