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后天性脑损伤青年的性别与从儿科到成人医疗保健的过渡:过渡模式中的经验

Gender and Transition From Pediatric to Adult Health Care Among Youth With Acquired Brain Injury: Experiences in a Transition Model.

作者信息

Lindsay Sally, Proulx Meghann, Maxwell Joanne, Hamdani Yani, Bayley Mark, Macarthur Colin, Colantonio Angela

机构信息

Bloorview Research Institute, Holland Bloorview Kids Rehabilitation Hospital, Toronto, ON; Department of Occupational Science and Occupational Therapy, University of Toronto, Toronto, ON.

Holland Bloorview Kids Rehabilitation Hospital, Toronto, ON.

出版信息

Arch Phys Med Rehabil. 2016 Feb;97(2 Suppl):S33-9. doi: 10.1016/j.apmr.2014.04.032. Epub 2015 Feb 4.

DOI:10.1016/j.apmr.2014.04.032
PMID:25660004
Abstract

OBJECTIVE

To explore gender and sex differences in experiences of transitioning to adult health care among young adults with acquired brain injury (ABI) who take part in a coordinated model of transitional care.

DESIGN

Descriptive design using in-depth semistructured qualitative interviews.

SETTING

Interviews over the phone and in person.

PARTICIPANTS

Participants (N=18) included 10 young adults with a diagnosis of ABI (4 women, 6 men; age range, 19-21y) and 9 parents (8 women, 1 man) from the Greater Toronto Area, Ontario, Canada.

INTERVENTIONS

Not applicable.

MAIN OUTCOME MEASURE

Semistructured interviews with participants.

RESULTS

Our findings highlight several commonalities and differences relative to sex and gender among young adults with ABI who are transitioning from pediatric to adult care. Both young adult men and women experienced a similar transition process and similar organization, continuity, and availability of care. Sex differences were found in relational factors (eg, communication, family involvement, social support). Young adult men, and parents of the men, differed in their transition regarding relational factors (eg, communication, family involvement).

CONCLUSIONS

Our findings show that young adult men and women with ABI who have taken part in a transition preparation program experience similarities in organization, continuity, and availability of care, but they experience differences in relational factors (eg, communication, family involvement).

摘要

目的

探讨参与过渡性护理协调模式的后天性脑损伤(ABI)青年成人在向成人医疗保健过渡过程中的性别差异。

设计

采用深入的半结构化定性访谈的描述性设计。

地点

电话访谈和面对面访谈。

参与者

参与者(N = 18)包括10名被诊断为ABI的青年成人(4名女性,6名男性;年龄范围19 - 21岁)以及来自加拿大多伦多地区安大略省的9名家长(8名女性,1名男性)。

干预措施

不适用。

主要观察指标

对参与者进行半结构化访谈。

结果

我们的研究结果突出了从儿科护理过渡到成人护理的ABI青年成人在性别方面的一些共性和差异。青年男性和女性经历了相似的过渡过程以及相似的护理组织、连续性和可及性。在关系因素(如沟通、家庭参与、社会支持)方面发现了性别差异。青年男性及其家长在关系因素(如沟通、家庭参与)的过渡方面存在差异。

结论

我们的研究结果表明,参与过渡准备项目的ABI青年男性和女性在护理组织、连续性和可及性方面存在相似之处,但在关系因素(如沟通、家庭参与)方面存在差异。

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