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说南非荷兰语的家长对其轻度至中度智力残疾子女权利的认知:一项描述性调查。

Afrikaans-speaking parents' perceptions of the rights of their children with mild to moderate intellectual disabilities: A descriptive investigation.

作者信息

Erasmus Alta, Bornman Juan, Dada Shakila

机构信息

Centre for Augmentative and Alternative Communication, University of Pretoria, South Africa.

Centre for Augmentative and Alternative Communication, University of Pretoria, South Africa

出版信息

J Child Health Care. 2016 Jun;20(2):234-42. doi: 10.1177/1367493515569326. Epub 2015 Feb 22.

Abstract

This study aimed to describe the perceptions of Afrikaans-speaking parents regarding the human rights, as defined by the United Nation's Convention on the Rights of the Child (CRC), of their children, aged between 8.0 and 14.11 (years/months), with mild to moderate intellectual disabilities. The underlying premise is that the CRC defines the rights of children, whereas the International Classification of Functioning, Disability and Health, Child and Youth version (ICF-CY) can provide the framework for documenting a deprivation of rights and the conditions under which those rights can be realized. Forty-seven Afrikaans-speaking parents completed a custom-designed survey. The results of the closed-ended questions indicated that most parents felt that their children had rights and that these rights were met. A theme analysis performed on the open-ended questions revealed that parents were mostly concerned about their children's rights pertaining to school education and safety. These rights were discussed in terms of the CRC articles and linked to environmental codes of the ICF-CY. Finally, the limitations and implications of the study are discussed and recommendations are made.

摘要

本研究旨在描述讲南非荷兰语的父母对于其8.0至14.11岁(岁/月)患有轻度至中度智力残疾子女的人权(如《联合国儿童权利公约》(CRC)所定义)的看法。其基本前提是,CRC界定了儿童权利,而《国际功能、残疾和健康分类》儿童和青少年版(ICF-CY)可为记录权利剥夺情况以及实现这些权利的条件提供框架。47位讲南非荷兰语的父母完成了一项定制调查。封闭式问题的结果表明,大多数父母认为他们的孩子拥有权利且这些权利得到了满足。对开放式问题进行的主题分析显示,父母主要关心的是孩子在学校教育和安全方面的权利。这些权利根据CRC条款进行了讨论,并与ICF-CY的环境准则相关联。最后,讨论了该研究的局限性和影响并提出了建议。

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