Effect of a self-management and follow-up program on self-efficacy in patients with multiple sclerosis: a randomized clinical trial.

BACKGROUND

Multiple sclerosis (MS) is the most common autoimmune disorder of the central nervous system with profound effects on patients' independence and self-efficacy. Then, it is still questionable whether self-management programs in patients with MS affect the patients' self-efficacy.

OBJECTIVES

The present study aimed to investigate the effect of a self-management program plus regular follow-up on self-efficacy in patients with MS.

PATIENTS AND METHODS

A quasi-experimental study was performed on 80 patients with relapsing remitting MS who were randomly allocated to an intervention (n = 40) and a control group (n = 40). The MS self-efficacy scale was completed before and after the intervention. The intervention group was divided into four small subgroups of ten. Then, each subgroup was invited to participate in four training sessions about self-management. During the two months after the self-management sessions, a weekly telephone follow-up was conducted for each patient in the intervention group. The control group did not receive any intervention other than routine care. Data were analyzed using SPSS 11.5. Descriptive statistics, Chi-square, and independent-samples t-testes were used to analyze the data.

RESULTS

No significant difference in mean scores of baseline self-efficacy was found between the control (52.90 ± 8.03) and the intervention groups (54.90 ± 9.51) (P = 0.313). However, a significant difference was observed between the control (50.90 ± 5.71) and the intervention groups (59.80 ± 5.27) regarding mean scores of self-efficacy at the end of the study (P < 0.001).

CONCLUSIONS

Implementing the self-management program plus regular follow-up increased the perception of self-efficacy in patients with MS. Similar self-management programs are recommended to be integrated in the regular caring of patients with MS.