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淋巴水肿症状与严重程度调查量表-手臂版的开发与验证

Development and validation of the Lymphedema Symptom and Intensity Survey-Arm.

作者信息

Ridner Sheila H, Dietrich Mary S

机构信息

Vanderbilt University School of Nursing, 461 21st Avenue South, Godchaux Hall, Nashville, TN, 37240, USA,

出版信息

Support Care Cancer. 2015 Oct;23(10):3103-12. doi: 10.1007/s00520-015-2684-y. Epub 2015 Mar 10.

DOI:10.1007/s00520-015-2684-y
PMID:25752884
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC4554806/
Abstract

PURPOSE

The purpose of this instrument development project was to create a self-report tool to evaluate arm lymphedema and associated symptoms in breast cancer survivors.

METHODS

The Lymphedema Symptom Intensity and Distress Survey-Arm (LSIDS-A) was developed and tested in three phases: phase 1-literature review and expert panel; phase 2-preliminary validation; and phase 3-final validation.

RESULTS

Phase 1: The most common symptoms experienced by breast cancer survivors with lymphedema were identified. A 52-item scale was developed. Phase 2: 128 community-dwelling breast cancer survivors (64 with lymphedema, 64 without lymphedema) completed the LSIDS-A. Feedback from the participants was that the format was "clear" and "made sense"; therefore, the response structure was left intact. Sixteen items were deleted leaving a 36-item revised instrument. Phase 3: Subsequent testing in a total sample of 236 breast cancer survivors with lymphedema was undertaken. The Cronbach's alpha reliability values for the overall intensity and distress scores were 0.93 and 0.94, respectively. The Kuder-Richardson values ranged from 0.66 to 0.92. Divergent validity evaluated against Marlowe-Crowne Social Desirebility Scale overall was acceptable (intensity, r s = 0.08; distress, r s  = -0.12). Convergent validity was acceptable as tested with multiple instruments (e.g., Functional Assessment of Cancer Therapy-Breast +4, overall intensity r s   = -0.44, overall distress r s   = -.48) CONCLUSIONS: The 30-item LSIDS-A is a valid and reliable instrument that can be used to assess arm lymphedema and its associated symptoms.

摘要

目的

本仪器开发项目的目的是创建一种自我报告工具,以评估乳腺癌幸存者的手臂淋巴水肿及相关症状。

方法

淋巴水肿症状强度与困扰调查-手臂版(LSIDS-A)分三个阶段进行开发和测试:第1阶段-文献综述和专家小组;第2阶段-初步验证;第3阶段-最终验证。

结果

第1阶段:确定了患有淋巴水肿的乳腺癌幸存者最常见的症状。编制了一个包含52个条目的量表。第2阶段:128名社区居住的乳腺癌幸存者(64名有淋巴水肿,64名无淋巴水肿)完成了LSIDS-A。参与者的反馈是,该量表的形式“清晰”且“合理”;因此,响应结构保持不变。删除了16个条目,留下一个包含36个条目的修订版工具。第3阶段:随后对总共236名患有淋巴水肿的乳腺癌幸存者进行了测试。总体强度和困扰评分的克朗巴哈系数可靠性值分别为0.93和0.94。库德-理查森值范围为0.66至0.92。与马洛-克劳恩社会期望量表相比,总体发散效度是可接受的(强度,rs = 0.08;困扰,rs = -0.12)。经多种工具测试,收敛效度是可接受的(例如,癌症治疗功能评估-乳腺癌+4,总体强度rs = -0.44,总体困扰rs = -0.48)结论:包含30个条目的LSIDS-A是一种有效且可靠的工具,可用于评估手臂淋巴水肿及其相关症状。

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Am J Phys Med Rehabil. 2015 Apr;94(4):288-96. doi: 10.1097/PHM.0000000000000178.
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A Morbidity Screening Tool for identifying fatigue, pain, upper limb dysfunction and lymphedema after breast cancer treatment: a validity study.一种用于识别乳腺癌治疗后疲劳、疼痛、上肢功能障碍和淋巴水肿的发病率筛查工具:有效性研究。
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A pilot randomized trial evaluating low-level laser therapy as an alternative treatment to manual lymphatic drainage for breast cancer-related lymphedema.
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Translation, Cross-Cultural Adaptation and Validation of the Lymphedema Quality of Life Questionnaire (LYMQOL) in German-Speaking Patients with Upper Limb Lymphedema.上肢淋巴水肿德语患者的淋巴水肿生活质量问卷(LYMQOL)的翻译、跨文化调适及验证
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Voices from the shadows: living with lymphedema.来自阴影的声音:与淋巴水肿共存。
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