Årestedt Liselott, Benzein Eva, Persson Carina
Faculty of Health and Life Sciences, Linnaeus University, Kalmar/Växjö, Sweden
Faculty of Health and Life Sciences, Linnaeus University, Kalmar/Växjö, Sweden Center for Collaborative Palliative Care, Faculty of Health and Life Sciences, Linnaeus University, Kalmar/Växjö, Sweden.
J Fam Nurs. 2015 May;21(2):206-31. doi: 10.1177/1074840715576794. Epub 2015 Mar 20.
Beliefs can be described as the lenses through which we view the world. With emerging illness, beliefs about the illness experience become important for nurses to understand to enhance well-being and healing. The aim of this study was to illuminate illness beliefs of families living with chronic illness. A qualitative design was chosen, including repeated narrative research interviews with seven Swedish families living with chronic illness. Hermeneutic analysis was used to interpret the transcribed family interviews. The result described beliefs in families, both within and across families. Both core beliefs and secondary beliefs about illness, family, and health care were revealed. Illness beliefs have importance for how families respond to and manage situations that arise from their encounters with illness. Nurses have to make space for and listen to families' stories of illness to become aware of what beliefs may support and encourage family well-being and healing. The Illness Beliefs Model provides a touchstone whereby nurses can distinguish both individual and shared beliefs within families living with chronic illness and provide ideas for family intervention if needed.
信念可以被描述为我们看待世界的透镜。对于新出现的疾病，护士了解关于疾病体验的信念对于增进幸福感和促进康复非常重要。本研究的目的是阐明慢性病患者家庭的疾病信念。我们选择了质性研究设计，包括对七个患有慢性病的瑞典家庭进行反复的叙事研究访谈。采用诠释学分析方法对转录的家庭访谈内容进行解读。研究结果描述了家庭内部以及不同家庭之间的信念。揭示了关于疾病、家庭和医疗保健的核心信念和次要信念。疾病信念对于家庭如何应对和处理因患病而出现的情况具有重要意义。护士必须为家庭的疾病故事留出空间并倾听，以便了解哪些信念可能支持和促进家庭的幸福感和康复。疾病信念模型提供了一个试金石，通过它护士可以区分慢性病患者家庭中的个人信念和共同信念，并在需要时为家庭干预提供思路。
