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护理科学与慢性病:阐述家庭生活中的痛苦与可能性。

Nursing science and chronic illness: articulating suffering and possibility in family life.

作者信息

Chesla Catherine A

机构信息

Department of Family Health Care Nursing at the University of California, San Francisco, USA.

出版信息

J Fam Nurs. 2005 Nov;11(4):371-87. doi: 10.1177/1074840705281781.

Abstract

Families living with a member who has a chronic illness vacillate between hope and despair, suffering and possibility. How this living "between" evolves in families and how family relations are affected has received insufficient attention. As nurses we can learn families' experiences of suffering and situated possibility through family narratives about and reflections on the everyday. Articulating this experience in thick, alive, complex, and practical texts promises to enhance our understanding, our practice with families, and our own lived possibilities.

摘要

与患有慢性病的家庭成员共同生活的家庭在希望与绝望、痛苦与可能性之间摇摆不定。这种处于两者“之间”的生活状态在家庭中如何演变以及家庭关系如何受到影响,一直未得到充分关注。作为护士,我们可以通过家庭对日常的叙述和反思来了解家庭的痛苦经历和特定的可能性。用丰富、生动、复杂且实用的文字来阐述这种经历,有望增进我们的理解、我们与家庭相处的实践以及我们自身生活的可能性。

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