Wallace Ann, Downs Erin, Gates Priscilla, Thomas Alison, Yates Patsy, Chan Raymond Javan
Cancer Care Services, Royal Brisbane and Women's Hospital, Herston, Queensland, Australia.
Olivia Newton-John Cancer and Wellness Centre, Austin Hospital, Heidelberg, Victoria, Australia.
Eur J Oncol Nurs. 2015 Oct;19(5):516-22. doi: 10.1016/j.ejon.2015.02.012. Epub 2015 Mar 18.
Many haematological cancer survivors report long-term physiological and psychosocial effects, which persist far beyond treatment completion. Cancer services have been required to extend care to the post-treatment phase to implement survivorship care strategies into routine practice. As key members of the multidisciplinary team, cancer nurses' perspectives are essential to inform future developments in survivorship care provision.
This is a pilot survey study, involving 119 nurses caring for patients with haematological malignancy in an Australian tertiary cancer care centre. The participants completed an investigator developed survey designed to assess cancer care nurses' perspectives on their attitudes, confidence levels, and practice in relation to post-treatment survivorship care for patients with a haematological malignancy.
Overall, the majority of participants agreed that all of the survivorship interventions included in the survey should be within the scope of the nursing role. Nurses reported being least confident in discussing fertility and employment/financial issues with patients and conducting psychosocial distress screening. The interventions performed least often included, discussing fertility, intimacy and sexuality issues and communicating survivorship care with the patient's primary health care providers. Nurses identified lack of time, limited educational resources, lack of dedicated end-of-treatment consultation and insufficient skills/knowledge as the key barriers to survivorship care provision.
Cancer centres should implement an appropriate model of survivorship care and provide improved training and educational resources for nurses to enable them to deliver quality survivorship care and meet the needs of haematological cancer survivors.
许多血液系统癌症幸存者报告了长期的生理和心理社会影响,这些影响在治疗结束后仍会持续很长时间。癌症服务机构需要将护理扩展到治疗后阶段,以便将生存护理策略纳入常规实践。作为多学科团队的关键成员,癌症护士的观点对于指导生存护理提供方面的未来发展至关重要。
这是一项试点调查研究,涉及澳大利亚一家三级癌症护理中心的119名护理血液系统恶性肿瘤患者的护士。参与者完成了一项由研究者开发的调查问卷,旨在评估癌症护理护士对血液系统恶性肿瘤患者治疗后生存护理的态度、信心水平和实践情况。
总体而言,大多数参与者同意调查问卷中包含的所有生存护理干预措施都应在护理职责范围内。护士们报告称,在与患者讨论生育和就业/财务问题以及进行心理社会痛苦筛查方面最缺乏信心。执行频率最低的干预措施包括讨论生育、亲密关系和性问题,以及与患者的初级医疗保健提供者沟通生存护理情况。护士们认为缺乏时间、教育资源有限、缺乏专门的治疗结束后咨询以及技能/知识不足是提供生存护理的主要障碍。
癌症中心应实施适当的生存护理模式,并为护士提供更好的培训和教育资源,使他们能够提供高质量的生存护理,满足血液系统癌症幸存者的需求。