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糖尿病困扰:了解糖尿病患者生活中的隐性挣扎并探索干预策略。

Diabetes distress: understanding the hidden struggles of living with diabetes and exploring intervention strategies.

作者信息

Berry Emma, Lockhart Sam, Davies Mark, Lindsay John R, Dempster Martin

机构信息

School of Psychology, Queen's University Belfast, Belfast, UK.

School of Medicine, Dentistry and Biological Science, Queen's University Belfast, Belfast, UK.

出版信息

Postgrad Med J. 2015 May;91(1075):278-83. doi: 10.1136/postgradmedj-2014-133017. Epub 2015 Mar 31.

Abstract

Diabetes distress is a rational emotional response to the threat of a life-changing illness. Distinct from depression, it is conceptually rooted in the demands of diabetes management and is a product of emotional adjustment. Diabetes distress has been found to be significantly associated with glycated haemoglobin (HbA1c) level and the likelihood of an individual adopting self-care behaviours. The lack of perceived support from family, friends and healthcare professionals significantly contributes to elevated diabetes distress, and this issue tends to be overlooked when designing interventions. Pioneering large-scale research, DAWN2, gives voices to the families of those with diabetes and reaffirms the need to consider psychosocial factors in routine diabetes care. Structured diabetes education programmes are the most widely used in helping individuals cope with diabetes, but they tend not to include the psychological or interpersonal aspects of diabetes management in their curricula. The need for health practitioners, irrespective of background, to demonstrate an understanding of diabetes distress and to actively engage in discussion with individuals struggling to cope with diabetes is emphasised.

摘要

糖尿病困扰是对一种改变生活的疾病威胁的合理情绪反应。与抑郁症不同,它在概念上源于糖尿病管理的要求,是情绪调整的产物。研究发现,糖尿病困扰与糖化血红蛋白(HbA1c)水平以及个体采取自我护理行为的可能性显著相关。来自家人、朋友和医疗保健专业人员的支持感缺失会显著加剧糖尿病困扰,而在设计干预措施时,这个问题往往被忽视。开创性的大规模研究DAWN2倾听了糖尿病患者家属的声音,并重申了在常规糖尿病护理中考虑心理社会因素的必要性。结构化糖尿病教育项目是帮助个体应对糖尿病最广泛使用的方法,但它们的课程往往不包括糖尿病管理的心理或人际方面。强调了无论背景如何,健康从业者都需要理解糖尿病困扰,并积极与难以应对糖尿病的个体进行讨论。

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