Silva Thatiana de Medeiros Vale da, Santos Maria Áurea Dos, Almeida Fabiane de Amorim
Albert Einstein Jewish Hospital, Oncology Unit, Sao Paulo, Brazil.
Clinic of the Paraisópolis Community Einstein Project, Jewish School of Health Sciences Albert Einstein, São Paulo, Brazil.
Rev Esc Enferm USP. 2014 Dec;48 Spec No. 2:39-45. doi: 10.1590/S0080-623420140000800007. Epub 2014 Dec 1.
Objective To understand the situations and communications experienced by caregivers of children with tuberculosis (TB) with regard to directly observed therapy (DOT). Method A descriptive exploratory study with a qualitative approach was applied and developed in the ambulatory of Programa Einstein na Comunidade de Paraisópolis (PECP). The data were collected using semi-structured interviews of 13 caregivers of children with TB in DOT. The Collective Subject Discourse (CSD) method was used to analyze the data. Results Seven CSDs were identified and grouped into four categories: "Living in a difficult situation", "Changing the family routine", "Responsibility almost always fall son the mother", and "Adapting to the DOT". Conclusions The difficulties faced by the caregiver of the child at the beginning of DOT significantly changed the familiar routine. The responsibility for its continuity was assigned to the mother, who must adapt to the demands of the treatment and face the situation.
目的 了解结核病患儿照护者在直接观察治疗（DOT）方面的经历和沟通情况。方法 在爱因斯坦社区计划（PECP）的门诊开展了一项采用定性方法的描述性探索性研究。通过对13名接受DOT的结核病患儿照护者进行半结构化访谈收集数据。采用集体主体话语（CSD）方法分析数据。结果 识别出7个集体主体话语并分为四类：“生活处境艰难”“改变家庭日常”“责任几乎总是落在母亲身上”以及“适应直接观察治疗”。结论 在直接观察治疗开始时，患儿照护者面临的困难显著改变了家庭日常。治疗连续性的责任落在了母亲身上，母亲必须适应治疗需求并面对这种情况。
