Silverman Alan H, Berlin Kristoffer S, Di Lorenzo Carlo, Nurko Samuel, Kamody Rebecca C, Ponnambalam Ananthasekar, Mugie Suzanne, Gorges Christina, Sanghavi Rina, Sood Manu R
Medical College of Wisconsin,
The University of Memphis, University of Tennessee Health Science Center-Memphis.
J Pediatr Psychol. 2015 Sep;40(8):814-24. doi: 10.1093/jpepsy/jsv028. Epub 2015 Apr 2.
The purpose of this study was to develop a caregiver-completed constipation condition-specific health-related quality of life (HRQL) instrument.
410 caregivers of children aged 2-18 years completed the Parental Opinions of Pediatric Constipation (POOPC), the PedsQL Generic Core Scales, PedQL Family Impact Module, Pediatric Symptom Checklist, the Functional Disability Inventory, the Pediatric Inventory for Parents, and a demographic questionnaire. Exploratory and confirmatory factor analyses were conducted to assess the psychometric properties of the POOPC.
Analyses yielded four factors called Parental Burden/Distress, Family Conflict, Difficulties with the Medical Team, and Worry about Social Impact that reflect problems in HRQL secondary to constipation and soiling, which were generally more strongly correlated with similar measures relative to a general measure of youth's psychosocial functioning.
The POOPC is a psychometrically sound measure, which may be useful to clinicians and researchers identifying domains of treatment needs for children and their families.
本研究旨在开发一种由照料者完成的、针对便秘状况的特定健康相关生活质量（HRQL）工具。
410名2至18岁儿童的照料者完成了《儿科便秘家长意见》（POOPC）、《儿童生活质量普适性核心量表》、《儿童生活质量家庭影响模块》、《儿科症状清单》、《功能残疾量表》、《家长儿科量表》以及一份人口统计学调查问卷。进行探索性和验证性因素分析以评估POOPC的心理测量特性。
分析得出四个因素，分别为“家长负担/苦恼”、“家庭冲突”、“与医疗团队的困难”以及“对社会影响的担忧”，这些因素反映了便秘和弄脏导致的健康相关生活质量问题，相对于青少年心理社会功能的一般测量指标，它们通常与类似测量指标的相关性更强。
POOPC是一种心理测量学上合理的测量工具，可能有助于临床医生和研究人员确定儿童及其家庭的治疗需求领域。
