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支持青少年对其长期身体状况进行管理的手机和平板应用程序:一项系统评价方案

Mobile Phone and Tablet Apps to Support Young People's Management of Their Physical Long-Term Conditions: A Systematic Review Protocol.

作者信息

Majeed-Ariss Rabiya, Hall Andrew G, McDonagh Janet, Fallon Deborah, Swallow Veronica

机构信息

School of Psychological Sciences, University of Manchester, Manchester, United Kingdom.

出版信息

JMIR Res Protoc. 2015 Apr 7;4(2):e40. doi: 10.2196/resprot.4159.

DOI:10.2196/resprot.4159
PMID:25854293
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC4405621/
Abstract

BACKGROUND

The prevalence of long-term or chronic conditions that limit activity and reduce quality of life in young people aged 10-24 years is rising. This group has distinct health care needs and requires tailored support strategies to facilitate increasing personal responsibility for the management of their condition wherever possible, as they mature. Mobile phone and tablet mobile technologies featuring software program apps are already well used by young people for social networking or gaming. They have also been utilized in health care to support personal condition management, using condition-specific and patient-tailored software. Such apps have much potential, and there is an emerging body of literature on their use in a health context making this review timely.

OBJECTIVE

The objective of this paper is to develop a systematic review protocol focused on identifying and assessing the effectiveness of mobile phone and tablet apps that support young people's management of their chronic conditions.

METHODS

The search strategy will include a combination of standardized indexed search terms and free-text terms related to the key concepts of young people; long-term conditions and mobile technology. Peer-reviewed journal articles published from 2003 that meet the inclusion and exclusion criteria will be identified through searching the generated hits from 5 bibliographical databases. Two independent reviewers will screen the titles and abstracts to determine which articles focus on testing interventions identified as a mobile phone or tablet apps, and that have been designed and delivered to support the management of long-term conditions in young people aged 10-24 years. Data extraction and quality assessment tools will be used to facilitate consistent analysis and synthesis. It is anticipated that several studies will meet the selection criteria but that these are likely to be heterogeneous in terms of study design, reported outcomes, follow-up times, participants' age, and health condition. Sub-group analyses will be undertaken and where possible meta-analyses will take place.

RESULTS

This review will synthesize available knowledge surrounding tablet and mobile phone apps that support management of long term physical health conditions in young people. The findings will be synthesized to determine which elements of the technologies were most effective for this population.

CONCLUSIONS

This systematic review aims to synthesize existing literature in order to generate findings that will facilitate the development of an app intervention. The review will form the first phase of development and evaluation of a complex intervention as recommended by the United Kingdom Medical Research Council. The knowledge gained from the review will be verified in subsequent phases, which will include primary qualitative work with health professionals and young people with long term conditions as research participants. Young people living with long-term conditions will be involved as co-researchers and consumer advisors in all subsequent phases to develop and evaluate an app to support the management of long-term physical health conditions.

TRIAL REGISTRATION

PROSPERO International prospective register of systematic reviews: CRD42014015418; http://www.crd.york.ac.uk/PROSPERO/display_record.asp?ID=CRD42014015418#.VRqCpTpnL8E (Archived by Webcite at http://www.webcitation.org/6XREcWqQY).

摘要

背景

在10 - 24岁的年轻人中,限制活动并降低生活质量的长期或慢性疾病的患病率正在上升。这一年龄段人群有独特的医疗保健需求,需要有针对性的支持策略,以便随着他们的成熟,尽可能增强其对自身疾病管理的个人责任感。配备软件程序应用的手机和平板移动技术已被年轻人广泛用于社交网络或游戏。这些技术也已被应用于医疗保健领域,通过使用针对特定疾病和患者定制的软件来支持个人疾病管理。此类应用具有很大潜力,并且关于其在健康领域应用的文献正在不断涌现,这使得本次综述恰逢其时。

目的

本文的目的是制定一项系统综述方案,重点在于识别和评估支持年轻人管理其慢性疾病的手机和平板应用的有效性。

方法

检索策略将包括与年轻人、长期疾病和移动技术等关键概念相关的标准化索引检索词和自由文本词的组合。通过搜索5个书目数据库生成的命中结果,将识别出2003年以来发表的符合纳入和排除标准的同行评审期刊文章。两名独立评审人员将筛选标题和摘要,以确定哪些文章专注于测试被确定为手机或平板应用的干预措施,并且这些干预措施是为支持10 - 24岁年轻人的长期疾病管理而设计和实施的。将使用数据提取和质量评估工具来促进一致的分析和综合。预计有几项研究将符合选择标准,但这些研究在研究设计、报告结果、随访时间、参与者年龄和健康状况方面可能存在异质性。将进行亚组分析,并在可能的情况下进行荟萃分析。

结果

本综述将综合围绕支持年轻人长期身体健康状况管理的平板和手机应用的现有知识。研究结果将进行综合,以确定该技术的哪些要素对这一人群最为有效。

结论

本系统综述旨在综合现有文献,以得出有助于开发应用干预措施的研究结果。该综述将构成英国医学研究理事会推荐的复杂干预措施开发和评估的第一阶段。从综述中获得的知识将在后续阶段得到验证,后续阶段将包括与健康专业人员以及患有长期疾病的年轻人作为研究参与者进行的初步定性研究。患有长期疾病的年轻人将作为共同研究人员和消费者顾问参与所有后续阶段,以开发和评估一款支持长期身体健康状况管理的应用。

试验注册

PROSPERO国际系统综述前瞻性注册库:CRD42014015418;http://www.crd.york.ac.uk/PROSPERO/display_record.asp?ID=CRD42014015418#.VRqCpTpnL8E(由Webcite存档于http://www.webcitation.org/6XREcWqQY)

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