Robinson Suzanne, Weiss Jonathan A, Lunsky Yona, Ouellette-Kuntz Hélène
York University, Toronto, ON, Canada.
Centre for Addiction and Mental Health, Toronto, ON, Canada.
J Appl Res Intellect Disabil. 2016 Jul;29(4):356-65. doi: 10.1111/jar.12184. Epub 2015 Apr 15.
Parents often play a lifelong role in supporting their sons and daughters with intellectual and/or developmental disabilities (IDD). There is a need to better understand parent resources, particularly when the individual with IDD has behaviour problems, as the latter has consistently been linked to parental burden.
The current study aimed to investigate the relationship between the behaviour support needs of 212 adults with IDD and parental burden, and whether perceived helpfulness of informal supports moderated this relationship. The helpfulness of individual sources of informal support was also explored.
Informal support was negatively related to burden, although it did not act as a moderator. Individual sources varied in terms of how they were related to burden, but none acted as moderators.
Although informal social support appears to be important to parents and may help alleviate burden, it does not appear to act as a moderator as anticipated.
父母通常在支持患有智力和/或发育障碍（IDD）的子女方面发挥着终身作用。有必要更好地了解父母所拥有的资源，尤其是当患有IDD的个体存在行为问题时，因为后者一直与父母负担相关联。
本研究旨在调查212名患有IDD的成年人的行为支持需求与父母负担之间的关系，以及非正式支持的感知帮助作用是否调节了这种关系。同时还探讨了各种非正式支持来源的帮助作用。
非正式支持与负担呈负相关，尽管它并未起到调节作用。不同的个人支持来源与负担的关联方式各不相同，但均未起到调节作用。
尽管非正式社会支持对父母似乎很重要，可能有助于减轻负担，但它似乎并未如预期那样起到调节作用。
