Joly Yann, Dyke Stephanie Om, Cheung Warren A, Rothstein Mark A, Pastinen Tomi
McGill Epigenome Mapping Centre, Centre of Genomics and Policy, Faculty of Medicine, McGill University, 740 Dr. Penfield Avenue, Montreal, Quebec H3A 0G1 Canada.
McGill Epigenome Mapping Centre, Faculty of Medicine, McGill University and Genome Quebec Innovation Centre, 740 Dr. Penfield Avenue, Montreal, Quebec H3A 0G1 Canada.
Clin Epigenetics. 2015 Apr 18;7(1):45. doi: 10.1186/s13148-015-0079-z. eCollection 2015.
In this letter to the editor, we respond to the recent publication by Philibert et al. Methylation array data can simultaneously identify individuals and convey protected health information: an unrecognized ethical concern (Clinical Epigenetics 2014, 6:28). Further discussion of the issues raised by the risk of re-identification of epigenetic methylation data is needed, and a more nuanced approach should be taken with respect to its implications for data sharing policy than the one provided.
在这封致编辑的信中,我们回应了菲利贝尔等人最近发表的文章《甲基化阵列数据可同时识别个体并传达受保护的健康信息:一个未被认识到的伦理问题》(《临床表观遗传学》2014年,6:28)。需要对表观遗传甲基化数据重新识别风险所引发的问题进行进一步讨论,并且在其对数据共享政策的影响方面,应采取比已提出的方法更为细致入微的方法。