Papachristou Iliatha, Hickey Gary, Iliffe Steve
Department of Applied Health Research, UCL, UK.
Centre for Public Engagement, Kingston University and SGUL, UK.
Dementia (London). 2017 Jan;16(1):108-118. doi: 10.1177/1471301215583148. Epub 2016 Jul 26.
As dementia progresses, caregivers increasingly have to manage the decline of food-related abilities with little outside information or input from support services The provision of food coping skills and knowledge can lessen the burden on caregivers. However, there is little research on caregivers' perspectives on food-related services. This paper reports on a qualitative study to investigate informal caregivers' experiences of, and views on, food-related information and support services in dementia. Twenty informal caregivers were interviewed and the transcripts from these interviews were analysed using both deductive and inductive thematic analysis. Four categories emerged. 'Direct food-related Information', covers written material, training, 'Direct food-related informal support': lunch clubs, 'Indirect non-food related formal support services' covers respite services and domestic help at home. Finally 'no services required' covers those who did not feel they needed any form of intervention due to confidence in managing food-related processes or having no change in dementia progression and food responsibility. Most caregivers will need different levels of information and support at different stages of dementia. It is necessary therefore to undertake ongoing individual assessment of food information and support needs.
随着痴呆症病情的发展，护理人员越来越需要在几乎没有外部信息或支持服务投入的情况下，应对与食物相关能力的衰退。提供食物应对技能和知识可以减轻护理人员的负担。然而，关于护理人员对食物相关服务看法的研究却很少。本文报告了一项定性研究，旨在调查非正式护理人员在痴呆症方面与食物相关信息及支持服务的经历和看法。对20名非正式护理人员进行了访谈，并运用演绎和归纳主题分析法对这些访谈的文字记录进行了分析。出现了四个类别。“直接与食物相关的信息”包括书面材料、培训；“直接与食物相关的非正式支持”包括午餐俱乐部；“间接与食物无关的正式支持服务”包括喘息服务和家庭家务帮助。最后，“无需服务”涵盖那些由于对管理与食物相关的流程有信心，或者痴呆症病情进展及食物责任没有变化而觉得自己不需要任何形式干预的人。大多数护理人员在痴呆症的不同阶段需要不同程度的信息和支持。因此，有必要对食物信息和支持需求进行持续的个体评估。
