Tam Sammi, McKay Adam, Sloan Sue, Ponsford Jennie
School of Psychological Sciences, Monash University , Melbourne , Australia .
Brain Inj. 2015;29(7-8):813-21. doi: 10.3109/02699052.2015.1005134. Epub 2015 Apr 27.
Family caregivers play an important role in managing challenging behaviours after TBI. The aims of this study were to understand how family caregivers of individuals with TBI perceive challenging behaviours and their impact on the TBI individual's community integration and family functioning.
A qualitative research design was employed to capture the lived experience of family caregivers of individuals with TBI.
Face-to-face interviews were conducted on six female family caregivers of individuals with severe TBI (sustained an average of 17 years earlier) and long-standing challenging behaviours.
The results revealed that family caregivers adopted a broader definition of challenging behaviour than that used by professionals and these behaviours impacted on the community integration of the individual with TBI, most notably leading to poor social relationships. Challenging behaviours were viewed as a key source of distress and burden for family caregivers and they used many different strategies to manage the behaviours.
Greater understanding of challenging behaviours from the perspectives of family caregivers may help provide more effective support and interventions to improve quality-of-life for individuals with challenging behaviours after TBI and their families.
家庭照顾者在管理创伤性脑损伤（TBI）后的挑战性行为方面发挥着重要作用。本研究的目的是了解TBI患者的家庭照顾者如何看待挑战性行为及其对TBI患者社区融入和家庭功能的影响。
采用定性研究设计来捕捉TBI患者家庭照顾者的生活经历。
对六名患有严重TBI（平均受伤时间为17年前）且长期存在挑战性行为的患者的女性家庭照顾者进行了面对面访谈。
结果显示，家庭照顾者对挑战性行为的定义比专业人员使用的定义更宽泛，这些行为影响了TBI患者的社区融入，最显著的是导致了不良的社会关系。挑战性行为被视为家庭照顾者痛苦和负担的主要来源，他们使用了许多不同的策略来管理这些行为。
从家庭照顾者的角度更好地理解挑战性行为，可能有助于提供更有效的支持和干预措施，以提高TBI后有挑战性行为的患者及其家庭的生活质量。
