Friedman Deborah, Masek Bruce, Barreto Esteban, Baer Lee, Lapey Allen, Budge Eduardo, McQuaid Elizabeth L
Massachusetts General Hospital, Harvard Medical School,
Massachusetts General Hospital, Harvard Medical School.
J Pediatr Psychol. 2015 Sep;40(8):768-80. doi: 10.1093/jpepsy/jsv035. Epub 2015 Apr 28.
To compare asthma care roles of maternal and paternal caregivers, and examine associations between caregiver involvement and the outcomes of adherence, morbidity, and parental quality of life (QoL).
Mothers and fathers in 63 families of children, ages 5-9 years, with persistent asthma completed semistructured interviews and questionnaires. Adherence was measured via electronic monitoring. Paired t tests compared parental asthma care roles, and analysis of covariance, controlling for socioeconomic status, evaluated associations of asthma outcomes with caregiver involvement scores.
Mothers had higher scores on measures of involvement, beliefs in medication necessity, and on four subscales of the Family Asthma Management System Scale interview (Asthma Knowledge, Relationship with Provider, Symptom Assessment, and Response to Symptoms). Maternal QoL was lowest when both maternal and paternal involvement was high. Paternal involvement was associated with increased morbidity.
There is room for enhancement of fathers' asthma care roles. Higher levels of paternal involvement may be driven by family need.
比较母亲和父亲照顾者在哮喘护理中的角色，并研究照顾者参与度与依从性、发病率及父母生活质量（QoL）结果之间的关联。
63个有5至9岁持续性哮喘儿童家庭的母亲和父亲完成了半结构化访谈和问卷调查。通过电子监测来衡量依从性。配对t检验比较父母在哮喘护理中的角色，协方差分析在控制社会经济地位的情况下，评估哮喘结果与照顾者参与度得分之间的关联。
母亲在参与度、对药物必要性的信念以及家庭哮喘管理系统量表访谈的四个子量表（哮喘知识、与提供者的关系、症状评估和对症状的反应）上得分更高。当母亲和父亲的参与度都很高时，母亲的生活质量最低。父亲的参与度与发病率增加有关。
父亲在哮喘护理中的角色有提升空间。更高水平的父亲参与度可能是由家庭需求驱动的。
