Adoukonou T, Tognon-Tchegnonsi F, Gnonlonfoun D, Djidonou A, Sego-Sounon D, Gandaho P, Houinato D
UER neurologie, Faculté de médecine Université de Parakou, 03BP10, Parakou, Bénin,
Bull Soc Pathol Exot. 2015 Mar;108(2):133-8. doi: 10.1007/s13149-015-0425-6. Epub 2015 Feb 27.
Despite the development of knowledge in diagnosis and therapeutic of epilepsy it remains to be cause of rejection and stigma. We aimed to study the knowledge, attitude and practice toward epilepsy and the stigma in a rural community. The cross-sectional study was carried out from 1st to 31st March 2011 in a rural community (Tourou) at Parakou in the northern Benin. It was a door-to-door survey and included 1 031 adults older than 15 years. The diagnosis of epilepsy was based on International League Against Epilepsy. The specific questionnaire was used and comprised 16 items which explored knowledge, attitude and practice toward epilepsy. Another questionnaire was developed to study stigma among epileptics. The associated factors to the misconception toward epilepsy have been studied. All adults have heard about epilepsy and knew the generalized tonic-clonic form of epilepsy and knew someone with epilepsy. Hereditary (98%) and witchcraft (97.9%) and social problems (65.9%) were mentioned as the most cause of epilepsy. Epilepsy was cited as contagious disease by 90.6% of respondents and the associated factors were the sex (p=0.005) and occupational status (0.024). The saliva (98.1%) and witness of the place of seizure (97.8%) were the frequently mentioned modes of transmission. 65% of all mentioned that epileptics can not get marriage and the main associated factors to this belief were the advanced age (p=0.008) and occupational status (0.004). 64.4% believed that children with epilepsy shouldn't be attend to school, age (0.004), ethnicity (0.047) and occupational status were the associated factors with this misconception. Despite 99.4% considered epilepsy as treatable disease only 12.7% would have referred epileptics to the hospital. All the seven epileptics considered themselves as victims of stigma and rejected by their family and the community. The misconceptions associated to the epilepsy can explain the stigma and the therapeutic gap in this rural community.
尽管在癫痫的诊断和治疗方面知识有所发展，但它仍然是遭受排斥和污名化的原因。我们旨在研究一个农村社区对癫痫的认知、态度和行为以及污名化情况。这项横断面研究于2011年3月1日至31日在贝宁北部帕拉库的一个农村社区（图鲁）进行。这是一项挨家挨户的调查，包括1031名15岁以上的成年人。癫痫的诊断基于国际抗癫痫联盟的标准。使用了专门的问卷，其中包含16个项目，用于探究对癫痫的认知、态度和行为。还设计了另一份问卷来研究癫痫患者中的污名化情况。对有关癫痫误解的相关因素进行了研究。所有成年人都听说过癫痫，知道癫痫的全身强直阵挛发作形式，并且认识癫痫患者。98%的人提到遗传、97.9%的人提到巫术以及65.9%的人提到社会问题是癫痫最主要的病因。90.6%的受访者将癫痫列为传染病，相关因素为性别（p = 0.005）和职业状况（0.
