Gergel Tania, Owen Gareth S
Department of Psychological Medicine, King's College London, Institute of Psychiatry, Psychology and Neuroscience, C/O Department of Classics, King's College London, Strand, London WC2R 2LS, UK.
King's College London, Institute of Psychiatry, Psychology and Neuroscience, Department of Psychological Medicine, UK.
Int J Law Psychiatry. 2015 May-Jun;40:92-101. doi: 10.1016/j.ijlp.2015.04.004. Epub 2015 May 2.
For people with Bipolar Affective Disorder, a self-binding (advance) directive (SBD), by which they commit themselves to treatment during future episodes of mania, even if unwilling, can seem the most rational way to deal with an imperfect predicament. Knowing that mania will almost certainly cause enormous damage to themselves, their preferred solution may well be to allow trusted others to enforce treatment and constraint, traumatic though this may be. No adequate provision exists for drafting a truly effective SBD and efforts to establish such provision are hampered by very valid, but also paralysing ethical, clinical and legal concerns. Effectively, the autonomy and rights of people with bipolar are being 'protected' through being denied an opportunity to protect themselves. From a standpoint firmly rooted in the clinical context and experience of mania, this article argues that an SBD, based on a patient-centred evaluation of capacity to make treatment decisions (DMC-T) and grounded within the clinician-patient relationship, could represent a legitimate and ethically coherent form of self-determination. After setting out background information on fluctuating capacity, mania and advance directives, this article proposes a framework for constructing such an SBD, and considers common objections, possible solutions and suggestions for future research.
对于双相情感障碍患者而言,一份自我约束(预先)指令(SBD),即他们承诺在未来躁狂发作期间接受治疗,即便不情愿,似乎是应对这种棘手困境最合理的方式。鉴于躁狂几乎肯定会给他们自身造成巨大损害,他们首选的解决办法很可能是让值得信赖的他人强制进行治疗和约束,尽管这可能很痛苦。目前尚无起草真正有效SBD的适当规定,而制定此类规定的努力因非常合理但也令人陷入僵局的伦理、临床和法律问题而受阻。实际上,双相情感障碍患者的自主权和权利正因被剥夺自我保护的机会而得到“保护”。基于深深扎根于躁狂的临床背景和经验,本文认为,基于以患者为中心的治疗决策能力评估(DMC-T)并建立在医患关系基础上的SBD,可能代表一种合法且符合伦理的自决形式。在阐述了关于能力波动、躁狂和预先指令的背景信息后,本文提出了构建此类SBD的框架,并考虑了常见异议、可能的解决方案以及对未来研究的建议。