Rosenkötter Nicole, Achterberg Peter W, van Bon-Martens Marja J H, Michelsen Kai, van Oers Hans A M, Brand Helmut
1 Department of International Health, CAPHRI, Faculty of Health, Medicine and Life Sciences, Maastricht University, Maastricht, The Netherlands
2 Department for Public Health Forecasting, National Institute for Public Health and the Environment (RIVM), Bilthoven, The Netherlands.
Eur J Public Health. 2016 Feb;26(1):65-70. doi: 10.1093/eurpub/ckv075. Epub 2015 May 4.
Despite the acknowledged value of an EU health information system (EU-HISys) and the many achievements in this field, the landscape is still heavily fragmented and incomplete. Through a systematic analysis of the opinions and valuations of public health stakeholders, this study aims to conceptualize key features of an EU-HISys.
Public health professionals and policymakers were invited to participate in a concept mapping procedure. First, participants (N = 34) formulated statements that reflected their vision of an EU-HISys. Second, participants (N = 28) rated the relative importance of each statement and grouped conceptually similar ones. Principal Component and cluster analyses were used to condense these results to EU-HISys key features in a concept map. The number of key features and the labelling of the concept map were determined by expert consensus.
The concept map contains 10 key features that summarize 93 statements. The map consists of a horizontal axis that represents the relevance of an 'organizational strategy', which deals with the 'efforts' to design and develop an EU-HISys and the 'achievements' gained by a functioning EU-HISys. The vertical axis represents the 'professional orientation' of the EU-HISys, ranging from the 'scientific' through to the 'policy' perspective. The top ranking statement expressed the need to establish a system that is permanent and sustainable. The top ranking key feature focuses on data and information quality.
This study provides insights into key features of an EU-HISys. The results can be used to guide future planning and to support the development of a health information system for Europe.
尽管欧盟卫生信息系统（EU-HISys）的价值已得到认可，且该领域也取得了诸多成就，但目前的情况仍然高度分散且不完整。通过对公共卫生利益相关者的意见和评估进行系统分析，本研究旨在明确欧盟卫生信息系统的关键特征。
邀请公共卫生专业人员和政策制定者参与概念图绘制程序。首先，参与者（N = 34）提出反映他们对欧盟卫生信息系统愿景的陈述。其次，参与者（N = 28）对每条陈述的相对重要性进行评分，并将概念相似的陈述归为一组。使用主成分分析和聚类分析将这些结果浓缩为概念图中的欧盟卫生信息系统关键特征。关键特征的数量和概念图的标注由专家共识确定。
概念图包含10个关键特征，概括了93条陈述。该图由一条横轴和一条纵轴组成，横轴代表“组织战略”的相关性，涉及设计和开发欧盟卫生信息系统的“努力”以及运作良好的欧盟卫生信息系统所取得的“成就”。纵轴代表欧盟卫生信息系统的“专业导向”，范围从“科学”视角到“政策”视角。排名第一的陈述表达了建立一个永久且可持续系统的必要性。排名第一的关键特征聚焦于数据和信息质量。
本研究深入探讨了欧盟卫生信息系统的关键特征。研究结果可用于指导未来规划，并支持欧洲卫生信息系统的开发。
