Malandraki Georgia A, Roth Melissa, Sheppard Justine Joan
Department Of Biobehavioral Sciences, Program of Speech and Language Pathology, Teachers College, Columbia University, New York, NY, USA ; Dysphagia Research Clinic, Edward D. Mysak Clinic for Communication Disorders, Teachers College, Columbia University, New York, NY, USA.
Department Of Biobehavioral Sciences, Program of Speech and Language Pathology, Teachers College, Columbia University, New York, NY, USA.
Int J Telerehabil. 2014 Sep 3;6(1):3-16. doi: 10.5195/ijt.2014.6135. eCollection 2014 Spring.
A closed-ended intensive pediatric swallowing telepractice program was developed and piloted in one pediatric patient with Opitz BBB/G and Asperger's Syndromes, oropharyngeal dysphagia and aerophagia. The present study is a case report. Outcome variables included behavioral, swallowing and quality of life variables, and were assessed at baseline and at the end of the four-week program. Selective variables were also assessed at a follow-up family interview four weeks post program completion. Over the four-week intervention period, the patient demonstrated substantial improvements in: oral acceptance of eating-related objects and a variety of foods (behavioral variable), timing of voluntary saliva swallows and aerophagia levels (swallowing variables) and quality of life. Follow-up interview analysis showed that most skills were retained or improved one-month post intervention. This intensive telepractice program proved to be feasible and effective for this pediatric patient with dysphagia.
开发了一个封闭式强化儿科吞咽远程治疗项目，并在一名患有奥匹茨BBB/G综合征和阿斯伯格综合征、口咽吞咽困难和气吞症的儿科患者身上进行了试点。本研究为病例报告。结果变量包括行为、吞咽和生活质量变量，并在基线和四周项目结束时进行评估。在项目完成四周后的随访家庭访谈中，还对选定变量进行了评估。在四周的干预期内，患者在以下方面有显著改善：对与进食相关物品和各种食物的口腔接受度（行为变量）、自主吞咽唾液的时间和气吞症水平（吞咽变量）以及生活质量。随访访谈分析表明，大多数技能在干预后一个月得以保留或提高。这个强化远程治疗项目被证明对这名患有吞咽困难的儿科患者是可行且有效的。
