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迈向关于乳腺癌筛查的明智决策:一项针对中国女性的决策辅助工具的开发与试点测试

Towards informed decisions on breast cancer screening: Development and pilot testing of a decision aid for Chinese women.

作者信息

Wong Irene O L, Lam Wendy W T, Wong Cheuk Nam, Cowling Benjamin J, Leung Gabriel M, Fielding Richard

机构信息

School of Public Health, Li Ka Shing Faculty of Medicine, The University of Hong Kong, Hong Kong, China.

School of Public Health, Li Ka Shing Faculty of Medicine, The University of Hong Kong, Hong Kong, China.

出版信息

Patient Educ Couns. 2015 Aug;98(8):961-9. doi: 10.1016/j.pec.2015.04.014. Epub 2015 Apr 29.

Abstract

OBJECTIVE

To pilot-test a novel, self-use breast cancer (BC) screening decision aid (DA) targeting Hong Kong (HK) Chinese women at average risk of BC.

METHODS

Women were recruited through a population-based telephone survey using random digit dialling between October 2013 and January 2014. Eligible participants completed our baseline survey and then received the DA by post. Participants (n=90) completed follow-up telephone interviews one month later.

RESULTS

Most participants thought that all/most DA content was presented clearly (86.7%), and was useful in helping women make screening-related decisions (88.9%). It also achieved its expected impact of improving informed decision-making and increasing shared-participation preference without increasing participants' anxiety levels. Participants showed a modest non-statistical increase in their screening knowledge scores. Older women rated the perceived severity of a BC diagnosis as significantly lower, and more educated women reported significantly lower perceived anxiety about the disease.

CONCLUSION

Our DA appears acceptable and feasible for self-use by HK Chinese women who need to make an informed decision about BC screening without increasing overall anxiety levels.

PRACTICE IMPLICATIONS

This study supports the potential of self-use DAs for cancer screening-related decision support in a Chinese population.

摘要

目的

对一种新型的、供自我使用的乳腺癌(BC)筛查决策辅助工具(DA)进行试点测试,该工具针对患BC平均风险的中国香港女性。

方法

在2013年10月至2014年1月期间,通过基于人群的随机数字拨号电话调查招募女性。符合条件的参与者完成我们的基线调查,然后通过邮寄方式收到该决策辅助工具。参与者(n = 90)在一个月后完成随访电话访谈。

结果

大多数参与者认为所有/大部分决策辅助工具的内容呈现清晰(86.7%),并且有助于女性做出与筛查相关的决策(88.9%)。它还实现了预期效果,即改善了明智决策并增加了共同参与偏好,同时没有增加参与者的焦虑水平。参与者的筛查知识得分有适度的、无统计学意义的提高。年龄较大的女性对BC诊断的感知严重程度评分显著较低,受教育程度较高的女性报告对该疾病的感知焦虑显著较低。

结论

我们的决策辅助工具对于需要就BC筛查做出明智决策且不增加总体焦虑水平的中国香港女性而言,似乎是可接受且可行的供自我使用的工具。

实践意义

本研究支持了自我使用的决策辅助工具在中国人群中为癌症筛查相关决策提供支持的潜力。

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