Ruiz-Montero Pedro J, Van Wilgen C Paul, Segura-Jiménez Victor, Carbonell-Baeza Ana, Delgado-Fernández Manuel
Department of Physical Education and Sport, Faculty of Sport Sciences, University of Granada, Carretera de Alfacar, s/n, CP 18071, Granada, Spain.
Pain in Motion Research Group, Transcare, Transdisciplinary Pain Management Centre, Groningen, The Netherlands.
Rheumatol Int. 2015 Dec;35(12):1985-93. doi: 10.1007/s00296-015-3281-6. Epub 2015 May 13.
The purpose of this study was to examine the differences in illness perception and overall impact on fibromyalgia females from Spain and the Netherlands. A total of 325 fibromyalgia females from Spain (54.3 ± 7.1 years) and the Netherlands (51.8 ± 7.2 years) participated in the study. Illness perception and impact of fibromyalgia were assessed by the Revised Illness Perception Questionnaire and the Fibromyalgia Impact Questionnaire, respectively. Spanish fibromyalgia females perceived more symptoms related to their fibromyalgia (identity) such as nausea, breathlessness, wheezing or fatigue (P < 0.001) and had greater emotional representation (P < 0.01). Dutch fibromyalgia females experienced less timeline (acute/chronic) and consequences (all, P < 0.05), had a better cyclical timeline, personal control, treatment control and illness coherence (all, P < 0.001). Spanish fibromyalgia females reported higher impact of fibromyalgia than Dutch females (61.2 + 14.8 vs. 54.9 + 16.4, respectively; P < 0.001), but the effect size was small (Cohen's d = 0.41) . Impact of fibromyalgia and negative views of fibromyalgia were higher in Spanish fibromyalgia females, whereas Dutch fibromyalgia females presented higher score of positive beliefs about the controllability of the illness. Psychological interventions which help patients to cope with their illness perception might lead to an improvement of the impact of the disease on fibromyalgia females.
本研究的目的是调查西班牙和荷兰纤维肌痛女性在疾病认知及总体影响方面的差异。共有325名来自西班牙（54.3±7.1岁）和荷兰（51.8±7.2岁）的纤维肌痛女性参与了该研究。分别通过修订后的疾病认知问卷和纤维肌痛影响问卷评估纤维肌痛的疾病认知和影响。西班牙纤维肌痛女性察觉到更多与她们的纤维肌痛（特征）相关的症状，如恶心、呼吸急促、喘息或疲劳（P<0.001），并且有更强的情感表现（P<0.01）。荷兰纤维肌痛女性经历的病程（急性/慢性）和后果较少（均P<0.05），有更好的周期性病程、个人控制感、治疗控制感和疾病连贯性（均P<0.001）。西班牙纤维肌痛女性报告的纤维肌痛影响高于荷兰女性（分别为61.2 + 14.8和54.9 + 16.4；P<0.001），但效应量较小（科恩d值 = 0.41）。西班牙纤维肌痛女性的纤维肌痛影响和对纤维肌痛的负面看法更高，而荷兰纤维肌痛女性对疾病可控性的积极信念得分更高。有助于患者应对其疾病认知的心理干预可能会改善该疾病对纤维肌痛女性的影响。
