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Helping the chronic schizophrenic and their families in the community-intial observations.帮助社区中的慢性精神分裂症患者及其家属:初步观察。
Indian J Psychiatry. 1980 Jan;22(1):97-102.
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Comparison of the extent and pattern of family burden in affective disorders and schizophrenia.比较情感障碍和精神分裂症患者家庭负担的程度和模式。
Indian J Psychiatry. 1995 Jul;37(3):105-12.
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Family burden among long term psychiatric patients.长期精神疾病患者的家庭负担。
Indian J Psychiatry. 1995 Apr;37(2):81-5.
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Instrument to assess burden on caregivers of chronic mentally ill.评估慢性精神病患者照顾者负担的工具。
Indian J Psychiatry. 1998 Jan;40(1):21-9.
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A qualitative study on the needs of caregivers of inpatients with schizophrenia in India.印度精神分裂症住院患者照顾者需求的定性研究。
Int J Soc Psychiatry. 2011 Mar;57(2):180-94. doi: 10.1177/0020764009347334. Epub 2010 Feb 16.
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Experience of caregiving in schizophrenia: a study from India.精神分裂症患者的照护体验:来自印度的一项研究。
Int J Soc Psychiatry. 2011 May;57(3):224-36. doi: 10.1177/0020764009352822. Epub 2009 Oct 29.
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Caregiver burden and coping: a prospective study of relationship between burden and coping in caregivers of patients with schizophrenia and bipolar affective disorder.照顾者负担与应对:一项关于精神分裂症和双相情感障碍患者照顾者负担与应对之间关系的前瞻性研究。
Soc Psychiatry Psychiatr Epidemiol. 2007 Nov;42(11):923-30. doi: 10.1007/s00127-007-0242-8. Epub 2007 Aug 13.
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Three-year outcome of family work in an early psychosis program.早期精神病项目中家庭干预的三年成果
Schizophr Res. 2005 Nov 1;79(1):107-16. doi: 10.1016/j.schres.2005.03.019.
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Caregiver-coping in bipolar disorder and schizophrenia--a re-examination.双相情感障碍和精神分裂症中照顾者的应对——重新审视
Soc Psychiatry Psychiatr Epidemiol. 2005 Apr;40(4):329-36. doi: 10.1007/s00127-005-0884-3.
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Caregiver stress and noncaregiver stress: exploring the pathways of psychiatric morbidity.照顾者压力与非照顾者压力:探索精神疾病的发病途径。
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为重度精神疾病患者提供护理:印度的经验。

Care giving of people with severe mental illness: an Indian experience.

作者信息

Janardhana Navaneetham, Raghunandan Shravya, Naidu Dodala Muniratnam, Saraswathi L, Seshan Valli

机构信息

Department of Psychiatric Social Work, National Institute of Mental Health and Neurosciences, Bangalore, Karnataka, India.

Programme Officer (Former), Basic Needs India, Bangalore, Karnataka, India.

出版信息

Indian J Psychol Med. 2015 Apr-Jun;37(2):184-94. doi: 10.4103/0253-7176.155619.

DOI:10.4103/0253-7176.155619
PMID:25969605
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC4418252/
Abstract

BACKGROUND

Caring is a fundamental issue in the rehabilitation of a person with mental illness and more so for people with severe mental illness. The lack of adequate manpower resources in the country is adding and enlisting the responsibility of providing care on the families to provide physical, medical, social and psychological care for their severely unwell mentally ill people.

AIM OF THE STUDY

To examine the load of caregiving with reference to the types of care during the symptomatic and remission phases of severe mental illness and the various ways in which caregivers adapt their lives to meet the needs of people with severe mental illness.

MATERIALS AND METHODS

The present research draws its data from the 200 families with mental illness in Andra Pradesh and Karnataka in India. The data presented in the study was collected from interviews using an interview schedule with open-ended questions.

RESULTS

The study diffuses the notion of 'care' as 'physical', 'medical, 'psychological' and 'social' care. The present article focuses on the caregiving roles of the caregivers of people with schizophrenia, affective disorders and psychosis not otherwise specified (NOS) and found that the caregiving does not differ much between the different diagnosis, but caregiving roles changes from active involvement in physical and medical care to more of social and psychological care during the remission.

CONCLUSION

The study records the incredulous gratitude of caregivers at being acknowledged for the work they do. In that regard, the study itself provides a boost to the morale of tired, unacknowledged caregivers.

摘要

背景

关怀是精神疾病患者康复中的一个基本问题,对于重度精神疾病患者而言更是如此。该国人力资源不足,使得为重度精神疾病患者提供身体、医疗、社会和心理护理的责任更多地落在了家庭身上。

研究目的

探讨重度精神疾病症状期和缓解期的护理负担,以及护理人员如何调整生活以满足重度精神疾病患者的需求。

材料与方法

本研究的数据来自印度安得拉邦和卡纳塔克邦的200个有精神疾病的家庭。研究中的数据通过使用开放式问题的访谈提纲进行访谈收集。

结果

该研究将“关怀”的概念细分为“身体”“医疗”“心理”和“社会”关怀。本文重点关注精神分裂症、情感障碍和未特定的精神病(NOS)患者护理人员的护理角色,发现不同诊断之间的护理工作差异不大,但在缓解期,护理角色从积极参与身体和医疗护理转变为更多地参与社会和心理护理。

结论

该研究记录了护理人员对自身工作得到认可的无比感激之情。在这方面,该研究本身提振了疲惫且未得到认可的护理人员的士气。