• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

父母照顾青少年精神疾病患者的体验:一项现象学研究。

The Lived Experience of Parent Caregivers of Adolescents with Mental Illness: A Phenomenological Study.

机构信息

Department of Fundamentals and Administration, College of Nursing, Sultan Qaboos University, Muscat, Oman.

College of Nursing, Yarmouk University, Irbid, Jordan.

出版信息

Int J Community Based Nurs Midwifery. 2024 Jan 1;12(1):2-12. doi: 10.30476/IJCBNM.2023.100667.2375. eCollection 2024 Jan.

DOI:10.30476/IJCBNM.2023.100667.2375
PMID:38328010
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10844873/
Abstract

BACKGROUND

The challenges faced by parents of adolescents with mental disorders are profound and multifaceted. Therefore, this study aimed to explore the lived experiences and concerns of parents of adolescents with mental disorders in Oman.

METHODS

Interpretative phenomenological analysis was employed in this study. In-depth interviews were done with twenty caregivers from June 2021 to the end of December 2022. Data collection continued until saturation was reached, ensuring a thorough understanding of the phenomena under investigation, and thematic analysis was applied to identify and examine the recurring patterns within the data.

RESULTS

Three primary themes emerged from the data analysis including Emotional Burden and Guilt, Treatment Concerns, and Fear of the Future. Parents' experiences during their adolescents' diagnosis revealed a profound emotional struggle, encompassing anxiety, frustration, and occasional confusion as they grappled with understanding their children's illness and navigating unpredictable behaviors. The exploration of seeking treatment highlighted the complexity of their experiences. However, a persistent sense of uncertainty regarding their children's future was a consistent thread irrespective of the chosen treatment path.

CONCLUSION

This study aimed to investigate the complex challenges faced by caregivers of adolescents suffering from mental disorders, underscoring the vital need for tailored interventions and robust support systems to address these intricate issues. The findings highlight the importance of heightened awareness, improved access to psychotherapeutic resources, and comprehensive caregiver support.

摘要

背景

青少年精神障碍患者父母所面临的挑战是深刻而多方面的。因此,本研究旨在探讨阿曼青少年精神障碍患者父母的生活经历和关注点。

方法

本研究采用解释性现象学分析。2021 年 6 月至 2022 年 12 月底,对 20 名照顾者进行了深入访谈。数据收集持续到达到饱和状态,以确保对研究现象有透彻的了解,并应用主题分析来识别和检查数据中的重复模式。

结果

数据分析中出现了三个主要主题,包括情绪负担和内疚、治疗关注和对未来的恐惧。父母在孩子被诊断出患有精神障碍期间的经历揭示了他们深刻的情感挣扎,包括焦虑、沮丧和偶尔的困惑,因为他们努力理解孩子的疾病并应对不可预测的行为。寻求治疗的探索突出了他们经历的复杂性。然而,无论选择哪种治疗途径,对孩子未来的不确定性感都是一个一致的主题。

结论

本研究旨在调查患有精神障碍的青少年照顾者所面临的复杂挑战,强调需要量身定制的干预措施和强大的支持系统来解决这些复杂问题。研究结果强调了提高认识、改善心理治疗资源的获取以及全面的照顾者支持的重要性。

相似文献

1
The Lived Experience of Parent Caregivers of Adolescents with Mental Illness: A Phenomenological Study.父母照顾青少年精神疾病患者的体验:一项现象学研究。
Int J Community Based Nurs Midwifery. 2024 Jan 1;12(1):2-12. doi: 10.30476/IJCBNM.2023.100667.2375. eCollection 2024 Jan.
2
Factors that influence parents' and informal caregivers' views and practices regarding routine childhood vaccination: a qualitative evidence synthesis.影响父母和非正式照顾者对常规儿童疫苗接种看法和做法的因素:定性证据综合分析。
Cochrane Database Syst Rev. 2021 Oct 27;10(10):CD013265. doi: 10.1002/14651858.CD013265.pub2.
3
Factors that influence caregivers' and adolescents' views and practices regarding human papillomavirus (HPV) vaccination for adolescents: a qualitative evidence synthesis.影响照顾者和青少年对青少年人乳头瘤病毒(HPV)疫苗接种的看法及做法的因素:一项定性证据综合分析
Cochrane Database Syst Rev. 2025 Apr 15;4(4):CD013430. doi: 10.1002/14651858.CD013430.pub2.
4
How lived experiences of illness trajectories, burdens of treatment, and social inequalities shape service user and caregiver participation in health and social care: a theory-informed qualitative evidence synthesis.疾病轨迹的生活经历、治疗负担和社会不平等如何影响服务使用者和照顾者参与健康和社会护理:一项基于理论的定性证据综合分析
Health Soc Care Deliv Res. 2025 Jun;13(24):1-120. doi: 10.3310/HGTQ8159.
5
"It's almost like not existing": Adult children's experiences of not being recognized and their perceptions of being forgotten by their parents with dementia.“这几乎就像不存在一样”:成年子女在不被患有痴呆症的父母认可以及被他们遗忘方面的经历。
Dementia (London). 2025 Jul;24(5):902-918. doi: 10.1177/14713012251324705. Epub 2025 Mar 12.
6
Prescription of Controlled Substances: Benefits and Risks管制药品的处方:益处与风险
7
"You think lots of love will heal the child, but it requires a lifetime of patience". Foster parents' intrapersonal and interpersonal struggles.“你以为很多的爱就能治愈这个孩子,但这需要一生的耐心”。养父母的内心和人际斗争。
Child Abuse Negl. 2024 Aug;154:106947. doi: 10.1016/j.chiabu.2024.106947. Epub 2024 Jul 16.
8
Psychosocial support during pregnancy: perceptions and expectations among pregnant teenagers in Ahvaz, Iran-a qualitative content analysis.孕期的心理社会支持:伊朗阿瓦士地区青少年孕妇的认知与期望——一项质性内容分析
Reprod Health. 2025 Jul 25;22(1):134. doi: 10.1186/s12978-025-02081-3.
9
The experiences of family members in the year following the diagnosis of a child or adolescent with cancer: a qualitative systematic review.儿童或青少年癌症诊断后一年内家庭成员的经历:一项定性系统综述
JBI Database System Rev Implement Rep. 2015 Jun 12;13(5):293-329. doi: 10.11124/jbisrir-2015-1698.
10
Children's experiences of living with a parent with mental illness: A systematic review of qualitative studies using thematic analysis.儿童与患有精神疾病的父母共同生活的经历:运用主题分析法对定性研究的系统综述
J Psychiatr Ment Health Nurs. 2018 Mar;25(2):131-141. doi: 10.1111/jpm.12415. Epub 2017 Aug 24.

引用本文的文献

1
Exploring the Impact of Anxiety, Depression and Fatigue on Quality of Life Among Caregivers of Individuals With Mental Health Disorders.探索焦虑、抑郁和疲劳对精神健康障碍患者照顾者生活质量的影响。
Cureus. 2025 Aug 16;17(8):e90243. doi: 10.7759/cureus.90243. eCollection 2025 Aug.
2
Impact of a pediatric digital mental health intervention on caregiver sleep and stress: A retrospective exploration of moderators of improvement.儿科数字心理健康干预对照顾者睡眠和压力的影响:改善调节因素的回顾性探索
Digit Health. 2025 Jul 28;11:20552076251361589. doi: 10.1177/20552076251361589. eCollection 2025 Jan-Dec.
3
A qualitative study to explore the experiences faced by primary caregivers of children with mental illness during the COVID-19 pandemic at the child and adolescent psychiatry OPD.一项定性研究,旨在探讨在新冠疫情期间,儿童与青少年精神病科门诊中,患有精神疾病儿童的主要照顾者所面临的经历。
Indian J Psychiatry. 2024 Oct;66(10):895-903. doi: 10.4103/indianjpsychiatry.indianjpsychiatry_627_23. Epub 2024 Oct 17.
4
Experiences of parents of children with mental illnesses: A systematic review and meta-ethnographic synthesis.患有精神疾病儿童的父母的经历:一项系统综述和元民族志综合研究。
Fam Process. 2025 Mar;64(1):e13087. doi: 10.1111/famp.13087. Epub 2024 Nov 24.

本文引用的文献

1
Self and public stigma towards mental illnesses and its predictors among university students in 11 Arabic-speaking countries: A multi-site study.11 个阿拉伯语国家大学生的精神疾病的自我和公众污名及其预测因素:一项多地点研究。
Int J Ment Health Nurs. 2023 Dec;32(6):1745-1755. doi: 10.1111/inm.13206. Epub 2023 Aug 23.
2
Parental Factors Associated with Child or Adolescent Medication Adherence: A Systematic Review.与儿童或青少年药物依从性相关的父母因素:一项系统综述。
Healthcare (Basel). 2023 Feb 8;11(4):501. doi: 10.3390/healthcare11040501.
3
The Challenges of Caring for an Adult Child with Schizophrenia in the Family: An Analysis of the Lived Experiences of Older Parents.照顾家庭中患有精神分裂症的成年子女的挑战:对老年父母生活经历的分析。
Inquiry. 2023 Jan-Dec;60:469580221148867. doi: 10.1177/00469580221148867.
4
Experiences of adolescents and parents on the mental health management of depression in adolescents, North West province, South Africa.南非西北省青少年和家长在青少年抑郁症心理健康管理方面的经验。
Curationis. 2022 Feb 16;45(1):e1-e9. doi: 10.4102/curationis.v45i1.2178.
5
Mental health service users experiences of medication discontinuation: a systematic review of qualitative studies.精神卫生服务使用者停药经历:定性研究的系统评价
J Ment Health. 2022 Apr;31(2):227-238. doi: 10.1080/09638237.2021.1922644. Epub 2021 Jun 14.
6
Psychosocial Challenges and Opportunities for Youth With Chronic Health Conditions During the COVID-19 Pandemic.新冠疫情期间患有慢性健康状况的青少年所面临的心理社会挑战与机遇
JMIR Pediatr Parent. 2020 Oct 12;3(2):e23057. doi: 10.2196/23057.
7
An Exploration of Family Caregiver Experiences of Burden and Coping While Caring for People with Mental Disorders in Saudi Arabia-A Qualitative Study.《沙特阿拉伯家庭照顾者在照顾精神障碍患者时的负担和应对体验探索:一项定性研究》
Int J Environ Res Public Health. 2020 Sep 2;17(17):6405. doi: 10.3390/ijerph17176405.
8
Health Outcomes of Parents of Children with Chronic Illness: A Systematic Review and Meta-Analysis.儿童慢性病患者父母的健康结局:系统评价和荟萃分析。
J Pediatr. 2020 Mar;218:166-177.e2. doi: 10.1016/j.jpeds.2019.10.068. Epub 2020 Jan 6.
9
Being Parent Caregivers for Adult Children with Schizophrenia.作为成年精神分裂症子女的父母照顾者。
Issues Ment Health Nurs. 2019 Apr;40(4):297-303. doi: 10.1080/01612840.2018.1524531. Epub 2019 Jan 14.
10
"Just keep pushing": Parents' experiences of accessing child and adolescent mental health services for child anxiety problems.“继续努力”:父母为孩子的焦虑问题寻求儿童及青少年心理健康服务的经历
Child Care Health Dev. 2019 Jul;45(4):491-499. doi: 10.1111/cch.12672. Epub 2019 May 27.