Marrón Belén, Craver Lourdes, Remón César, Prieto Mario, Gutiérrez Josep M, Ortiz Alberto
Renal Medical Affairs , Baxter , Spain.
Advanced CKD Care Unit , H. Universitario Arnau de Vilanova , Lleida , Spain.
NDT Plus. 2010 Oct;3(5):431-5. doi: 10.1093/ndtplus/sfq116. Epub 2010 Jun 28.
There is a long distance between the actual worldwide reality in advanced chronic kidney disease care and the desire of how these patients should be managed to decrease cardiovascular and general morbidity and mortality. Implementation of adequate infrastructures may improve clinical outcomes and increase the use of home renal replacement therapies (RRT). Current pitfalls should be addressed to optimise care: inadequate medical training for nephrological referral and RRT selection, late referral to nephrologists, inadequate patient education for choice of RRT modality, lack of multidisciplinary advanced kidney disease clinics and lack of programmed RRT initiation. These deficiencies generate unintended consequences, such as inequality of care and limitations in patient education and selection-choice for RRT technique with limited use of peritoneal dialysis. Multidisciplinary advanced kidney disease clinics may have a direct impact on patient survival, morbidity and quality of life. There is a common need to reduce health care costs and scenarios increasing PD incidence show better efficiency. The following proposals may help to improve the current situation: defining the scope of the problem, disseminating guidelines with specific targets and quality indicators, optimising medical speciality training, providing adequate patient education, specially through the use of general decision making tools that will allow patients to choose the best possible RRT in accordance with their values, preferences and medical advice, increasing planned dialysis starts and involving all stakeholders in the process.
在晚期慢性肾脏病护理的实际全球现状与如何管理这些患者以降低心血管疾病及总体发病率和死亡率的期望之间存在很大差距。实施适当的基础设施可能会改善临床结局并增加家庭肾脏替代治疗(RRT)的使用。应解决当前的缺陷以优化护理:肾脏科转诊和RRT选择的医学培训不足、向肾脏科医生转诊过晚、患者对RRT方式选择的教育不足、缺乏多学科晚期肾脏病诊所以及缺乏有计划的RRT启动。这些不足会产生意想不到的后果,如护理不平等以及患者教育和RRT技术选择受限,腹膜透析使用有限。多学科晚期肾脏病诊所可能会对患者的生存、发病率和生活质量产生直接影响。普遍需要降低医疗成本,增加腹膜透析发病率的方案显示出更高的效率。以下建议可能有助于改善当前状况:明确问题范围、传播具有特定目标和质量指标的指南、优化医学专业培训、提供充分的患者教育,特别是通过使用通用决策工具,使患者能够根据自身价值观、偏好和医学建议选择最佳的RRT,增加计划性透析开始并让所有利益相关者参与这一过程。